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Here's to Your Health:  finally moving forward with my cancer treatment  |
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Penny Wise
True Blue Farmgirl
1903 Posts
Margo
Elyria
OH
USA
1903 Posts |
 Posted - Jan 31 2012 : 09:27:16 AM
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today i met with the medical oncologist (MO) again. he has now scheduled me for a test on my heart to see what it can take (called a MUGA). and we were able to move up the CAT scans to this week by me driving to a different facility.
so--thursday this week i have a 915am appt for the CAT scans in one city then back to my city to the hospital for 1 pm MUGA. next week on tuesday i have a mammo (mine was done in michigan and they want their own film here), wednesday i go to "chemo school", thursday i meet with a PCP to get established and the plan is to start chemo on monday the 13th at 8:15 am.it'll just be a lil past 8 weeks from diagnosis so in the grand scheme it's within reason but it seems like a long time.....
i'm still planning to get my hair cut super short and hope to send my own hair to a place called hatswithhair.com to get "underhair"--it will be a cloth piece to cover my dome with my own hair hanging from it to wear under hats and scarves to resemble.....get this.... my own hair! it's costly (well i think it is!!!!) and if i had normal ins i could get a scrip--i doubt medicaid will pay for it so i am hoping to secure a grant from the Ladies' Aux of the VFW.the holdup there is getting the application from my leader!
having a time frame to work with allows me the luxury of having my son help me move some heavy stuff to storage this weekend and to finish arranging things here in the new apt.
i'm trying to help my sweetie man get acclimated to driving around here and he is really taxing my nerves -it's like the back of my hand as i lived here for 35 years even tho some places are new and they have added one way streets and lights where they weren't before...his age (72) is starting to bring some dementia i think-or it may just be the stresses....
i am having some difficulty sleeping and yesterday was just simply in a funk all day....doc prescribed ativan for me today and i got it filled-just in case....tho i really want to "save" them for when treatments start...
today the sun is shining and it's 50* so that is helping me!
when i got my scrip filled, i bought a big cork bulletin board for cards and such-i think it needs some lace and trim tho!!!!!!!i have to find my stash!
Farmgirl # 2139
proud member of the Farmgirls of the Southwest Henhouse
~*~ counting my pennies and biding my time; my dreams are adding up!~*~ |
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farmmilkmama
True Blue Farmgirl
2027 Posts
Amy
Central MN
USA
2027 Posts |
Posted - Jan 31 2012 : 12:39:03 PM
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Glad to hear that things are getting rolling for you, but goodness they sure give you a full plate, don't they? Busy!! You are in my prayers today and in the days to come. The underhair thing sounds neat - never heard of that before. :)
--* FarmMilkMama *--
Farmgirl Sister #1086
Be yourself.
Everyone else is already taken.
-Oscar Wilde
www.farmfoodmama.blogspot.com
www.thehmmmschoolingmom.blogspot.com |
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ceejay48
Farmgirl Legend/Schoolmarm/Sharpshooter
13627 Posts
CeeJay (CJ)
Dolores
Colorado
USA
13627 Posts |
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laurentany
True Blue Farmgirl
3259 Posts
Laurie
Patchogue
NY
USA
3259 Posts |
Posted - Jan 31 2012 : 4:41:16 PM
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Hi Margo-
Happy to see that things are rolling along for you. You have my continued prayers and well wishes. I agree- that under hair thingy sounds really cool- I've never heard of it before either. Have paitence with your man- I am sure that the stress of EVERYTHING has a little to do with his confusions etc. Its alot to grasp in such a short amount of time, and of course everyone has their own way of dealing with things.
As CJ has said- we are here for you, so if you need us just holler!
Hugs,
~Laurie
"Little Hen House on the Island"
Farmgirl Sister#1403
Life is not measured by the number of breaths we take, but by the moments that take our breath away.. |
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Bear5
True Blue Farmgirl
13055 Posts
Louisiana/Texas
USA
13055 Posts |
Posted - Jan 31 2012 : 6:12:14 PM
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Margo, I will keep you in my prayers through your journey. If you need cards, let us know, I'll send some. Do keep us posted.
Marly
"It's only when we truly know and understand that we have a limited time on earth- and that we have no way of knowing when our time is up- that we will begin to live each day to the fullest, as if it was the only one we had." Elisabeth Kurler-Ross |
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Penny Wise
True Blue Farmgirl
1903 Posts
Margo
Elyria
OH
USA
1903 Posts |
Posted - Jan 31 2012 : 6:51:18 PM
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marly i love cards and notes and stuff! i love snail mail!!!
today i bought a big bulletin board to hang just for the cards and notes that i have rec'd since my diagnosis...i'm going to pretty it up and hang it on the wall so that it is the first thing i see as i walk toward the desk and the front door!!!!
Farmgirl # 2139
proud member of the Farmgirls of the Southwest Henhouse
~*~ counting my pennies and biding my time; my dreams are adding up!~*~ |
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farmmilkmama
True Blue Farmgirl
2027 Posts
Amy
Central MN
USA
2027 Posts |
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sherrye
True Blue Farmgirl
3775 Posts
sherry
bend in the high desert
oregon
USA
3775 Posts |
Posted - Feb 01 2012 : 07:26:18 AM
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sending you a big huge giant hug and love and a prayer. i used to sit in chemo for 6 hours a day. for me it was 4 times a week. for 8 years. it got old. not for chemo but for my iron. i found bringing things to keep me busy helps a lot. they would give me the same pre-meds as chemo. folks. so a little nap some visiting and some busy work helps pass the time some. we would all trade goodies. so will be thinking of you and sending love your way my friend sherrye
the learn as we go silk purse farm
farm girl #1014
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GirlwithHook
True Blue Farmgirl
922 Posts
Alyce
Madison
WI
USA
922 Posts |
Posted - Feb 01 2012 : 12:47:02 PM
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Lots of prayers for you hon!
A hook, a book, and a good cup of coffee.... |
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Fiddlehead Farm
True Blue Farmgirl
4562 Posts
Diane
Waupaca
WI
USA
4562 Posts |
Posted - Feb 01 2012 : 5:08:14 PM
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Margo, my prayers and thoughts are with you during your journey. You have a great support system and the right attitude!
http://studiodiphotosite.shutterfly.com/
farmgirl sister #922
I am trying to be the person my dogs think I am.
I get up every morning determined to both change the world and have one hell of a good time. Sometimes this makes planning my day difficult.
- E. B. White |
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countrymommy85
True Blue Farmgirl
898 Posts
Krystle
MT
USA
898 Posts |
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ruthie218
True Blue Farmgirl
1425 Posts
Ruthie Ann
Indiana
USA
1425 Posts |
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Amie C.
True Blue Farmgirl
2099 Posts
Finger Lakes Region
NY
2099 Posts |
Posted - Mar 04 2012 : 07:37:45 AM
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Margo, about the ativan...I know someone else who had it prescribed a few months ago while going through a stressful medical issue. It's working out really well for him. No side affects noticed, and dependency isn't an issue unless you seriously abuse the stuff. My friend takes it occasionally (like a couple times a week) when he's having a really bad day and wants to be sure he gets his night's sleep. Based on his experience, I'd say go ahead and use it whenever you think of it not just for "emergency". I don't think it was very expensive either. I know he has money worries, being out of work, and hasn't said anything about it.
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Penny Wise
True Blue Farmgirl
1903 Posts
Margo
Elyria
OH
USA
1903 Posts |
Posted - Mar 04 2012 : 4:50:26 PM
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amie; thx for chiming in! my ativan is covered by the medicaid insurance that i qualified for with cancer so it is not a worry. i have taken them a few times when i knew that i would need an exceptionally long time to wind down to get to sleep (mainly on "steroid" days! i still have to be cautious but i am using them as needed.
Farmgirl # 2139
proud member of the Farmgirls of the Southwest Henhouse
~*~ counting my pennies and biding my time; my dreams are adding up!~*~ |
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ceejay48
Farmgirl Legend/Schoolmarm/Sharpshooter
13627 Posts
CeeJay (CJ)
Dolores
Colorado
USA
13627 Posts |
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Simple Living
True Blue Farmgirl
1402 Posts
Joan
Staten Island
NY
USA
1402 Posts |
Posted - Mar 05 2012 : 09:44:22 AM
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Hi Margo can you email me your address so I can send you a little trinket. I also had cancer and it's now 8 yrs and I'm doing fine. Going for my annual PET Scan/CT on March 13th. I will pray for you with everyone else.
Happy Trails
Farmgirl 3842 |
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Simple Living
True Blue Farmgirl
1402 Posts
Joan
Staten Island
NY
USA
1402 Posts |
Posted - Mar 07 2012 : 06:05:23 AM
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Hi Margo I mailed out your package today. I hope it will make you smile a while.
Happy Trails
Farmgirl 3842 |
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Here's to Your Health: finally moving forward with my cancer treatment |
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finally moving forward with my cancer treatment
