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Family Matters:  my Danny boy is Autistic! !  |
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yarnmamma
True Blue Farmgirl
4247 Posts
Linda
Clarks Summit
PA
USA
4247 Posts |
 Posted - Mar 17 2008 : 09:23:02 AM
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We just got the final diagnosis for my Danny boy, age 7. He had been having so much trouble with relating to people, and not knowing how to act. He is agressively friendly, and doesn't realize that he can scare other kids. After years of punishment, trying to teach, etc. plus other things about him, example: obsessive compulsive. A specialist has diagnosed Autistic. A high functioning autism is called Aspergers.
Danny boy just isn't able to learn some things...can't understand at all. Now he is starting to think that people don't like him, but he doesn't know why.
This is hard for me to hear and to realize now. 
The good side is that now he could qualify for the services and help he needs, and also more patience and understanding from me.
I love him so much.
Linda
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"NEVER underestimate the power of a woman."
farmgirl #71 Linda in PA |
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KYgurlsrbest
True Blue Farmgirl
4853 Posts
Jonni
Elsmere
Kentucky
USA
4853 Posts |
Posted - Mar 17 2008 : 09:25:49 AM
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Wow, Linda! I'm sooo glad that he's found a diagnosis. There are many good sides to finding out that he has Aspergers. Several friends of ours have children who are either Asperger kids or have serious autism. You can do it and now you have tools and knowledge to help him succeed :) I know it's difficult but, mystery solved and now you can move on.
Farmgirl Sister #80, thanks to a very special farmgirl from the Bluegrass..."She was built like a watch, a study in balance ... with a neck and head so refined, like a drawing by DaVinci"...
NY Newsday sportswriter Bill Nack describing filly, Ruffian.
http://www.buyhandmade.org/ |
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Nance in France
True Blue Farmgirl
1438 Posts
Nancy
St. Laurent de la Salanque
France
1438 Posts |
Posted - Mar 17 2008 : 10:06:00 AM
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| Linda, so very sorry to hear about your little boy. But Jonni is right; when you know what you're dealing with, it has got to be easier and more success will be realized. Sending you and Danny boy a big hug, Nance |
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Alee
True Blue Farmgirl
22941 Posts
Alee
Worland
Wy
USA
22941 Posts |
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Utahfarmgirl
True Blue Farmgirl
1940 Posts
Portland
Oregon
USA
1940 Posts |
Posted - Mar 17 2008 : 11:12:58 AM
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Linda, how lucky Danny boy is to have such a caring mother! New things are being found out every day about treating Aspergers. Let's take a moment and give thanks for the excellent treatment and cure he is receiving right now. Let it manifest right before our eyes and in our hearts in the form of beautiful blue light shining around and in him.
Patricia
Proud Farmgirl Sister #19
Rusty Chicks Chapter
check out my etsy site http://ThePlayfulFarmgirl.etsy.com
Today I choose faith not fear. |
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yarnmamma
True Blue Farmgirl
4247 Posts
Linda
Clarks Summit
PA
USA
4247 Posts |
Posted - Mar 17 2008 : 11:48:47 AM
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Thanks to everyone for the encouragement. You gals are so loving. 
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"NEVER underestimate the power of a woman."
farmgirl #71 Linda in PA |
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Annika
True Blue Farmgirl
5602 Posts
Annika
USA
5602 Posts |
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mommom
True Blue Farmgirl
854 Posts
Susan
Lancaster
Pennsylvania
USA
854 Posts |
Posted - Mar 17 2008 : 3:09:51 PM
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| I have a dear friend who's two boys (ages 8 and 6) have Aspbergers. It was such a relief to find out the diagnosis for these two! They are also getting the help they need. Blessings to you and Danny Boy and give that child a hug from me! Susan |
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willowtreecreek
True Blue Farmgirl
4813 Posts
Julie
Russell
AR
USA
4813 Posts |
Posted - Mar 17 2008 : 3:43:40 PM
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autism is so misunderstood but if you look at the stats it is really quite common among children and especially boys. I am sure this is a scarey time for you. I will pray for you and your family and especially Danny. I hope you can find some guidance and information from your schools special education teachers. Please let me know if I can help in any way!
Farmgirl Sister #17
Blog
www.willowtreecreek.wordpress.com
Felt and Fabric Crafts
www.willowartist.etsy.com
www.willowtreecreek.com
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Kathie
True Blue Farmgirl
2436 Posts
Kathie
Thonotosassa
Florida
USA
2436 Posts |
Posted - Mar 17 2008 : 4:00:18 PM
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Jeez Linda.. You know this was just staring us all right in the face all this time!!
I can't believe we didn't even pick up on it either!
YES!! Now of course that your saying it out loud.. YES!! It really does make sence!
This is going to be ok sweetie.. I know any news that we hear about our babies is always
devastating when it comes to their health.. but this is all treatable.. & he really is ok..
he can funtion.. he can grow.. he can learn.. & he DOES have a Great mother that loves him dearly.. He'll be fine.. NOW you know what's been going on all this time sweetie..
So like you said.. You'll be able to get the help you need.. with the RIGHT resources!!
& you'll BOTH be just fine..
I'm so sorry that you have had to go it on your own.. But he couldn't be a luckier little guy,
then he is to have YOU for his Mama you know!!
We all love you Pumpkin.. So we're right here for you if you need us!!
Kathie.. Farm Girl Sister #29
"In a World Where you Can Be Anything, Be Yourself".. |
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CabinCreek-Kentucky
True Blue Farmgirl
8529 Posts
Frannie
Green County
Kentucky
USA
8529 Posts |
Posted - Mar 17 2008 : 4:32:59 PM
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my sweet cousin is a major fundraiser for Autism .. travels all over the country in this endeavor. she says so many advances are being made .. we all just have to give and give and give to help this very worthy cause.
i know your sweetie pie will be alright .. just a big hurdle to get over .. but he will .. with love and understanding of this condition and how to deal with it. hugs to you and to your little one. xo
True Friends * Frannie
HEAR MY STORIES
come, visit my:
"GATHERING ROOM" ..
http://freedomvalleyfarm.blogspot.com
adopt a 'rag-chile'
http://sistermercysfoundlinhome.blogspot.com
treasures .. new and olde .. up for adoption:
http://mudpiemanormercantile.blogspot.com
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electricdunce
True Blue Farmgirl
2544 Posts
Karin
Belmont
ME
USA
2544 Posts |
Posted - Mar 17 2008 : 6:55:20 PM
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Linda , I've just been watching a program on Discovery Health television and there was a piece about a young boy diagnosed with Asberger's. His parents found out about a program called Son Rise, and it has changed his life to an incredible degree. I'm sure there is information about this program on the internet. It was heartening to see the change in this child who couldn't relate to people to being able to deal with his problem and enjoy his life and be able to relate to people. I'm sure you'll get lots of great advice from your doctor and friends, but I just wanted to pass this along. It is so hard shen our children have problems that we can;t figure out. You are going to have many challenges ahead, but there are wonderful things learned about your son's condition all the time. Knowledge is always better than worry.
Farmgirl Sister #153
"Give me shelter from the storm" - Bob Dylan
http://moodranch.blogspot.com |
Edited by - electricdunce on Aug 31 2009 5:28:04 PM |
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Carol Sue
True Blue Farmgirl
4033 Posts
Carol Sue
Washingtonian
USA
4033 Posts |
Posted - Mar 17 2008 : 7:36:27 PM
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Linda,
Wow girl you have had an adventure but I am glad that you now know exactly what it is. The unknown is pretty darn scary, knowing means you can move forward.
Hugs to you and Davey.
listening to the quiet moments
Farmgirl #39
www.Quitemoments.blogspot.com |
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vintagegrl
True Blue Farmgirl
280 Posts
Jeanette
NH
USA
280 Posts |
Posted - Mar 18 2008 : 05:29:56 AM
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| Linda, So sorry you and Danny had to go through all of this. What can I add to what's been said before, Thinking of both of you. |
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palmettogirl
True Blue Farmgirl
571 Posts
sue
camden
south carolina
USA
571 Posts |
Posted - Mar 18 2008 : 05:54:09 AM
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| sorry to hear the road ahead of you is going to be a struggle, but like everyone said, at least now that you have a diagnosis, you can focus on what's going to help danny and you. it's obvious, i'm sure, but go to the library and bookstores, too, and do some reading on aspergers and general autism. different books will focus on different aspects of having and working with autism. my daughter has a learning disability in reading comprehension. i learned that that learning disability also affects her ability to comprehend inuendos in general conversation thus affecting her skills in social relationships. the reason i bring this up is that i read several books and sometimes i'd only get something valid or that would make sense to me from only one chapter in an entire book---but it did help and made a difference. good luck. |
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nashbabe
True Blue Farmgirl
687 Posts
687 Posts |
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Mumof3
True Blue Farmgirl
3890 Posts
Karin
Ellenwood
GA
USA
3890 Posts |
Posted - Mar 18 2008 : 06:45:59 AM
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Now that you know, you can forge ahead and give him all of the help that he needs. That is how it was for us when we found out John was deaf, had cerebral palsy and is moderately mentally impaired. It was an "At last!" moment for us because we knew that now that there was a diagnosis, there could be a course of care for him. We have been very blessed over the past 22 years and I know that you will be as well. There will be difficult times for each of you, that is a given. But grab onto the good moments, hold them close and they will carry you through. I promise.
(((hugs)))
Karin
Farmgirl Sister
# 18 :)
Wherever you go, there you are.
www.madrekarin.blogspot.com |
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queenofdreamsz4u
True Blue Farmgirl
3845 Posts
Stephanie Suzanne
Smoky Mountains Tennessee
USA
3845 Posts |
Posted - Mar 27 2008 : 10:55:22 PM
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Hey Linda, (((((hugs to you and Danny boy))))!! I can only imagine how hard this is for the both of you but now at least you have some answers to ??? about his behavior and it's wonderful that he can receive the help he needs.
Praying for both of you...
Stephanie |
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Tina Michelle
True Blue Farmgirl
6948 Posts
Tina
sunshine state
FL
USA
6948 Posts |
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UrbanChick
True Blue Farmgirl
331 Posts
Ayako
Atlanta
GA
USA
331 Posts |
Posted - Mar 28 2008 : 08:04:50 AM
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I've been keeping an eye on this topic and I just didn't have words to say at that moment. I have an autistic daughter as well, it's devestating when you first hear of it but you have a diagnosis now and now you can do the best you can to help your child adapt to the world around him. Social skill groups can help him with his overly friendly attitude with other kids and help him make friends. My daughter is 5 and we had a diagnosis when she was 3. We've been doing therapy for her since she was 18 months. She has come a long way but she is just starting to realize it is getting harder to make friends and that she is different. The stages I went through when she was diagnosed was sadness, guilt, frustration, anger, wanting to try to "cure" her, over protectiveness, to acceptance. I hope your journey into this will not be so difficult. If you need someone to talk to let me know. I know I've been doing this with the help of my farmgirl sisters and others. I don't belong to a support group because for now I think we are doing ok with what I have, but perhaps a group will help you get to the resources you need to help your son. Depending on your state you may be eligible for medical assistance, support or even therapies at no cost or low cost. It can get expensive with all the different therapies around and not all of them are medically sound so just do your research and if you are confused there is plenty of help out there. Please let me know if I can be of assistance to you.
"Courage dosen't always roar. Sometimes courage is the quiet voice at the end of the day saying: I will try again tomorrow." |
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yarnmamma
True Blue Farmgirl
4247 Posts
Linda
Clarks Summit
PA
USA
4247 Posts |
Posted - Mar 28 2008 : 3:08:39 PM
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Thanks so much to all of you for suggestions, hugs and good wishes.
I have to admit I think I'm in the "trying to cure" stage, and getting frustrated with the "system", especially the school system. The laws don't mean anything unless people are made to follow the laws or even their own school district rules! I am learning the hard way and I stress everytime the phone rings during the day praying that it isn't his school teacher calling with a complaint about his behavior. The last call was only a couple days ago. I swear I want to just not answer it and let them deal with him until school is out. I should let my phone take a message.
Right now I am studying the laws for special ed students...lots of pages that I got from an advocate. It is one day at a time.
I really like reading your experiences.
I love Danny boy so much and thank God everyday for him in a special way now. I am feeling sorry for him and probably spoiling him. What is really hard is trying to figure out what he understands and what he doesn't. What to expect and what just isn't going to work.
on and on One day at a time
****************
"NEVER underestimate the power of a woman."
farmgirl #71 Linda in PA |
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bboopster
True Blue Farmgirl
1140 Posts
Betty Jo
West Bend
Wisconsin
USA
1140 Posts |
Posted - Mar 28 2008 : 6:26:37 PM
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Linda, Keep after the schools, educate yourself on all the laws and use an advocate. Be a pest and demand what your son needs. I was in special education for over 10 years and had 2 special needs children that I adopted. I have to be honest I'm sure there were times when the school hated me but when it came to my kids I was a wench. The children who had parents who were visible and verbal got the best help. Stay strong and do not be afraid to ask for help. Hugs to you and Danny 
http://www.bboopster.blogspot.com
3 Blue Star Mother and Proud of it!
Pray for our troops to come home safe and soon.
Enjoying the road to the simple life :>) |
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Sitnalta
True Blue Farmgirl
4208 Posts
Jessica
NJ
USA
4208 Posts |
Posted - Aug 31 2009 : 7:28:51 PM
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I am sorry that little Danny has to deal with this. It is a pretty common thing nowadays, and I know there is alot of help and support groups out there for both you and him. I hope that the Lord will direct your path to be able to find the best way to work with Danny so that he can be the happiest little guy there is.
HUGS to you BOTH!!
Jessie
People are like stained-glass windows.
They sparkle and shine when the sun is out,
but when the darkness sets in,
their true beauty is revealed only if there is a light from within.
www.messiejessie2.blogspot.com |
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Tn.Earthmama
True Blue Farmgirl
451 Posts
Phyllis
Englewood
Tennessee
451 Posts |
Posted - Sep 02 2009 : 4:14:01 PM
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Hey Linda, at last you have a name for what you have been dealing with. I think it's always easier to cope when you know what you are dealing with. Nothing wrong with being in the cure stage, heck you might find something that helps.
sending love and hugs for you and Danny boy. Phyllis |
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1badmamawolf
True Blue Farmgirl
2199 Posts
Teresa
"Bent Fence Farms"
Ca
USA
2199 Posts |
Posted - Sep 02 2009 : 4:54:19 PM
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My oldest Grandson is autistic and blind, along with several other medical issues. It has been a long haul for him and my son and daughter-in-law, but they couldn't be better parents. We've almost lost him several times due to his medical problems, which include ( and I don't know the exact medical terms for all, so bare with me), his blood sugar will jump to 400 plus for no reason, and then drop tp 14, he will be on growth hormones for the rest of his life due to a pituatarygland that never developed, his potasium levels drop without warning and he will seize, if he gets the flu, he ends up in the hospital for a week. He's 10 yeras old and as sweet as he can be, loves music and dogs ( he has a therapy dog which helps keep him calm and keeps him safe), he loves to be sung too, no matter how bad your voice is, and he loves to be outside, no matter the weather. He goes to school everyday and is learning alot from his teachers, and when its the weekend, or vacation or a holiday he is sad, cause hes not in school. If I had to pick his perfect parents, his Mom and Dad are the ones. I know how tuff it is , and God has special Angeles just for these kids and their parents, I am glad you are going to be getting the proper help, and if you ever need to, FIGHT for what your son needs.
"Treat the earth well, it was not given to you by your parents, it was loaned to you by your children" |
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LynnMarie
True Blue Farmgirl
612 Posts
Lynn
Staunton
IL
USA
612 Posts |
Posted - Sep 02 2009 : 7:31:06 PM
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Oh Linda, I am right there with you. My 18 year old just received the Asperger's DX in May. Keep after the school for services that he deserves. Email me off subject if you want to ask questions.
Hugs,
LynnMarie
Bringing the Past Back to Life
www.freewebs.com/decampsettlement
"You may never know what results come from your action. But, if you do nothing, there will be no results" -Gandhi |
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Family Matters: my Danny boy is Autistic! ! |
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my Danny boy is Autistic! !
