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Here's to Your Health:  Anyone else have hyperparathyroidism  |
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Cozynana
True Blue Farmgirl
1123 Posts
Kem
1123 Posts |
 Posted - Dec 20 2015 : 8:03:34 PM
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I have had one failed surgery. I tried to get into the Norman Parathyroid Center in Tampa, FL and was told my first surgeon botched my throat and I can't have another surgery again on my throat. I was told I need to manage my calcium and vit d levels to manage the condition. I was devastated. I don't have a clue where to start. I would appreciate any suggestions what to do. My endo was clueless and don't think he is going to be of much help.
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CindyG
True Blue Farmgirl
293 Posts
Cindy
Fairfax
VA
USA
293 Posts |
Posted - Dec 21 2015 : 03:38:45 AM
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Hi Cozynana,
I clicked on in hopes of sharing a bit about a friend's experience with surgery, but then saw your situation is so very different. I am sorry, and I know how frustrating it is when the expert who should be able to help cannot.
Have you sought a second opinion, or gotten any recommendations for another doctor?
I hope and pray that someone on the site has some experience that can give you guidance and some comfort. Hearing what others have been through and how they managed things helps so very much.
Cindy
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Cozynana
True Blue Farmgirl
1123 Posts
Kem
1123 Posts |
Posted - Jan 19 2016 : 09:10:43 AM
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| cindy, thanks for your kindness. I am in the process of finding another doctor to see what we can do. It is very frustrating because I have great desire with a body that does not cooperate all the time. I am up and going one day and flat on my back a couple of days later. I hate it. Oh well, my lot to bear, so off I go, on to bigger and better. |
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Kangaroo Kate
True Blue Farmgirl
253 Posts
Teresa
Red Oak
Texas
USA
253 Posts |
Posted - Feb 11 2016 : 9:51:06 PM
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Cozynana
been there done that. I hope what I can share will be of any help to you. my situation I know is different but bottom line may be similar.
I am on dialysis which contributed to the problem drs over most of past 10 years ignored it- well truth is didn't know what to do and ignored it I reached a critical level in my numbers became life threatening. I had a new dr who did know what to do. surgery had to be done. took all but 1/2 of a parathyroid. that had to be transplanted in my right arm (non dialysis arm) they do that for dialysis people.
well next problem dr who did it I don't think he was very good.
It has been about a year and half now and still once in a while
have trouble swallowing still. was a very slow healing process more than should of been! so I understand what your saying about your throat.
I didn't know at the time that there is a newer better technique and this dr I had did the old way of cutting your throat all the way across. new technique makes a small incision instead.
You do have to watch calcium levels. if too high or too low you can have problems. can be serious problems. if too low can be deadly and you can zone out. that happened once to me and I went into a kind of seizure. too high has its problems too and so you need a dr who can recommend a balance with the calcium & vit D etc.. to keep your numbers where they should be. for me it has been a juggling act to get that accomplished. I will have to take the calcium supplent rest of life. I am not sure how it might affect you. If you can find a good dr who can help you manage the calcium levels you should be ok I would think.
I would see another dr and just see what he may have to say.
Best of luck to you !!!
Teresa
sister #1506
Dance Like No One Is
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Kangaroo Kate
True Blue Farmgirl
253 Posts
Teresa
Red Oak
Texas
USA
253 Posts |
Posted - Feb 11 2016 : 10:18:04 PM
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Kem
I read another post made earlier than one I saw.
I have been struggling with feeling good since
the parathyroid ordeal. NO energy! I was told
I may never be better than what I am right now.
that was NOT what I wanted to hear!! I was always
active and now well had to quit working doing my
pony rides. I don't do but a fraction of the house
work I used to do. we are trying to get me stronger
but feels like a downhill battle many days. I have
been in a position past 3 years I have cheated death
so many times we have lost count. twice I had one foot
in heaven and they pulled me back. Everytime I go
around a dr I am the worse for it. I have to daily
focus on getting stronger. and do WHATEVER it takes to
do that.
What has helped me some and doing better is finding me
again! I got back to the farm here with all the wonderful
sisters, getting back to doing the things I once loved
and had it taken away, I dress up doesn't matter if I am
doing dishes or what.. just a frame of mind to pick myself
up. I do what it takes to feel better in a day.
I like to do chi gong when I get up in the morning if I can
that is good to help balance your energy levels. I have a
dvd by debrah davis (found it at 1/2 price books) it is wonderful.
I listen to healthy music, tones affect our body and mental
well being. I am able to walk again took a while I was so down.
find what makes you happy and DO IT. I don't care anymore
what most people think of me.. being a bit essentric sometimes in being me. ha I wear what I want to wear if it makes me feel good even if I feel awful I still feel better with clothes I feel good in. I wear cheerful colors I got rid of about anything in my closet that was dark colors
I keep everything around me positive as I can. I spend
quality time with my animals. My wallabies are my therapy.
I refuse to let this condition I have to live with pull me
down and take my joy and life from me. although some days
it is very hard! I find when I get on the farm and read what
sisters are chatting about and enjoy photos it lifts me up
out of that dark place. I have been given a chance to try to get on the transplant list again for a kidney and waiting patiently right now to see if I do get on. I hope that may also help to improve my life. I take my herbs drink my teas eat healthy.
I refuse to be depressed.
I hope this helps, I totally understand where you are and
how difficult it can be.
Teresa
sister #1506
Dance Like No One Is
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KristiW
Moderator/Farmgirl True
639 Posts
Kristine
MaryJanesFarm
USA
639 Posts |
Posted - Feb 12 2016 : 09:50:48 AM
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Thyroid problems can be so debilitating, considering the thyroid is responsible for so many metabolic processes in your body. I would search high and low to find a good endocrinologist. A good one can turn your life around.
Kristi
Farmgirl Sister #6
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marjean
True Blue Farmgirl
3851 Posts
Marsha
Deltona
FL
USA
3851 Posts |
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Kangaroo Kate
True Blue Farmgirl
253 Posts
Teresa
Red Oak
Texas
USA
253 Posts |
Posted - Feb 18 2016 : 3:47:51 PM
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The thing with parathyroid issues is different from
thyroid issues. a different organ and affects you
differently. cant be treated the same. I didn't know
much at all a about it until I had to deal with it.
Teresa
sister #1506
Dance Like No One Is
Watching. |
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Cozynana
True Blue Farmgirl
1123 Posts
Kem
1123 Posts |
Posted - Mar 03 2016 : 06:30:29 AM
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| Marsha, I received your letter. Thanks so much. Working with a well known endorsement in Alabama currently. Praying for miracles, been feeling tough |
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Here's to Your Health: Anyone else have hyperparathyroidism |
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Anyone else have hyperparathyroidism
