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Here's to Your Health:  Need advice on hyperparathyroid  |
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Cozynana
True Blue Farmgirl
1123 Posts
Kem
1123 Posts |
 Posted - Nov 19 2014 : 10:20:30 PM
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| I had a parathyroid surgery about a year and a half ago, The surgeon removes 3 1/2 outof 4. My PTH is elevated again and having many issues. I need to find a surgeon that does these type surgeries daily. I am 57 and feel like my life is slipping away, passed caring anymore and that scares me. Just have waves of being so sick. |
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Ninibini
True Blue Farmgirl
7577 Posts
Nini
Pennsylvania
USA
7577 Posts |
Posted - Nov 20 2014 : 04:57:32 AM
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Oh, Kem! I'm so sorry to hear you are suffering with this, even after your surgery! I don't have any insight to share, but I do care and want you to know I will be praying for you! Please just know we love you and are here for you, if you need us. If you ever want to talk, I am here - just email me! Hugs and love - Nini
Farmgirl Sister #1974
God gave us two hands... one to help ourselves, and one to help others!
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Red Tractor Girl
True Blue Farmgirl
6663 Posts
Winnie
Gainesville
Fl
USA
6663 Posts |
Posted - Nov 20 2014 : 1:06:23 PM
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Kem, I would start with a visit to your general physician to get some help and advice on where to turn for a surgical consult or to meet with an endocrinologist. Perhaps there are some medications that you can take since you already have had a big surgery. Good luck and I hope you will find someone with expertise in your issue very soon! Take care and we are all here to support you!
Winnie #3109
Red Tractor Girl
Farm Sister of the Year 2014 |
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hudsonsinaf
True Blue Farmgirl
3162 Posts
Shannon
Rozet
Wyoming
USA
3162 Posts |
Posted - Nov 20 2014 : 5:38:12 PM
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Kem - I'm not sure where you are located, but Jason Prescott at Johns Hopkins is a PHENOMENAL endocrine surgeon! It was worth the trips up to see him for my surgery, and I know he would have been able to do my parathyroid surgery had I needed it at the time, as well. (They decided to wait and see if my adrenal surgery would fix the rest of my hormones). Please know I am praying for you and I so agree with Winnie - we are all here to support you!!!
~ Shannon
http://hudson-everydayblessings.blogspot.com/ |
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ceejay48
Farmgirl Legend/Schoolmarm/Sharpshooter
13664 Posts
CeeJay (CJ)
Dolores
Colorado
USA
13664 Posts |
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Cozynana
True Blue Farmgirl
1123 Posts
Kem
1123 Posts |
Posted - Nov 22 2014 : 7:57:37 PM
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| Thanks for all the thought. Would appreciate the prayers., I did go to my pcp and we decided to do a MRI and see if my pituitary gland is OK. He also suggested I go somewhere and see if it is my parathyroid again. The really good surgeons are many hours away. Have to think about that for a bit. In the meantime I also had an appointmnet with the endo. He does not know what to make of it. He suggested a rhuematologist and immunologist. He said sometime things over lap. He gave me names of doc 1 1/2 hours away. Closer than what I am use to. Busy week seeing docs, but am feeling better and looking forward to seeing other docs that might be able to fit the pieces together. I am hoping to get some more genetic testing done. Already know I have 2 mutations. Thanks for listening, sometimes it just helps to get it off my chest. |
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marjean
True Blue Farmgirl
3857 Posts
Marsha
Deltona
FL
USA
3857 Posts |
Posted - Dec 27 2014 : 12:08:32 PM
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Kem I hope you get to a good doctor soon that knows about Lyme disease and how it upsets the whole body this way. I am so happy with the one I found. I am improving daily with my overall feeling of enjoying life again.
Farmgirl sister #308
Swag Bag Marketing
www.marketsofsunshine.com
Bible Research
www.jw.org |
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Cozynana
True Blue Farmgirl
1123 Posts
Kem
1123 Posts |
Posted - Feb 15 2015 : 08:28:23 AM
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Marsha, how are you coming with your health. I feel better, but have been having bouts of kidney stones and herxes from treating Bart and Babesia. Just wondering if your doc has you on anything you think has really helped.
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Fiddlehead Farm
True Blue Farmgirl
4562 Posts
Diane
Waupaca
WI
USA
4562 Posts |
Posted - Feb 17 2015 : 11:48:43 AM
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I am hypothyroid due to Hashimoto's and I have fired all my doctors. Go to www.stopthethyroidmadness.com and read other people's stories and what they have done. I am taking the Natural Desiccated Thyroid and have started to get my life back! Good luck and prayers sent to you.
http://studiodiphotosite.shutterfly.com/
farmgirl sister #922
I am trying to be the person my dogs think I am.
I get up every morning determined to both change the world and have one hell of a good time. Sometimes this makes planning my day difficult.
- E. B. White |
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Cozynana
True Blue Farmgirl
1123 Posts
Kem
1123 Posts |
Posted - Feb 22 2015 : 06:23:17 AM
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| Diane, what are your Hashimoto symptoms. I have had a doctor ask me if I didn't have it. I thought, hummmm, isn't that your job to test and tell me if I have it. I have been to 4 endos all a wreck. So disheartening. I have the stop the thyroid madness. At the time I bought it I was too sick to read and comprehend it. I will dig it out and read it again. I do know that since I have been on a product for adrenals and DHEA I am much better as far as the hormones go. I am currently working with a naturopath to correct hormonal and thyroid issues. I had a bunch of tests and will get results and consultation from her this Tues. REally interested to see what she has to say. We rechecked all level for hyperparathyroid also. |
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Here's to Your Health: Need advice on hyperparathyroid |
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Need advice on hyperparathyroid
