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Family Matters:  Aria and the end of 2009  |
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julia hayes
True Blue Farmgirl
1132 Posts
julia
medical lake
wa
USA
1132 Posts |
 Posted - Dec 31 2009 : 11:04:10 AM
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Aria continues to do well. She has her days but overall, we really do seem to be out of the dark-dark forest. I know there are no promises, no guarantees but let me tell you most of our days are filled with light and promising moments. I feel incredibly grateful..Actually, there are no words for how I feel.
Aria had a spinal tap on Tuesday (December 29th). This is when they draw some spinal fluid to make sure no leukemia cells have decided to show their ugly faces there AND then chemotherapy is injected into the spinal fluid to ensure that any leukemia cells lurking in the shadows don't get any big ideas. Leukemia cells have never been detected in her spinal fluid but that doesn't mean that at any time they could suddenly show up. This is all a precautionary measure. Leukemia can often affect the central nervous system via the spinal fluid and this bad when it happens. Some kids deal with it with no repercussions whatsoever and others aren't so lucky.
Aria also had her big gun chemotherapy and last month was hard on her. It made her especially tired and caused some serious pain in her legs--the likes of which I hadn't seen for a long time. I'm hoping this month isn't so bad. So far so good. By afternoon she gets some horrible looking circles under her eyes but she rests and feels better.
We had a wonderful holiday. Santa was good to all the kids and we've been having a very low key vacation here at home. Lots of playing with toys, drinking hot chocolate, watching movies, taking naps, playing outside. It has been just perfect.
I hesitate to use that word-perfect-because it doesn't fully apply. If this cancer world was only Aria, it would indeed be perfect. But it isn't just about Aria and that makes it, well, difficult. 3 little friends died this month. All of them had leukemia. This reality makes Aria's health and success so much sweeter and yet it mixes with such horrific bitterness. It's hard to know how to be...
Aria has ONE more spinal tap scheduled on March 16th! She has 3 more rounds of big gun chemotherapy and by March 21, 2010 all of her daily chemotherapy will come to an end!!! You read that right...March 21st Aria will walk to the other side of this cancer experience and greet each day as a SURVIVOR!!
To all of you who have stayed with me on this journey, there are no words to express my gratitude. There is no way I would have marched on through without you cheering me on. I'm serious. I'm not just saying it. I don't even know how to put it nto words...how comforting this forum has been when I needed to be distracted, when I needed to purge my thoughts, express my worries, cry, and wallow in anxiety. It has been monumental knowing how many people have been pulling for Aria, carrying her in their thoughts...Really, there's nothing like it!!
Here's to Aria leaping into a New Year!!! ~julia
being simple to simply be
Farmgirl #30
www.julia42.etsy.com
www.about-aria.blogspot.com |
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Firemama
True Blue Farmgirl
1731 Posts
Amanda
Medical Lake
WA
USA
1731 Posts |
Posted - Dec 31 2009 : 11:13:57 AM
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Julia , I pray Aria continues to feel better. She is so amazing.And I know you dont really want to hear it, but you are too.
I'll have to email you a pic off my phone, of Aria getting her award last month. I was there cause my Autumn got a CUB award too!!
Mama to 2
FarmGirl# 20
People can only make you feel inferior with your permission, and you dont have my permission......
Dont let the chain of love end with you.....
http://myfarmdreams.blogspot.com/
http://www.etsy.com/shop/justanotherhousewife |
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1badmamawolf
True Blue Farmgirl
2199 Posts
Teresa
"Bent Fence Farms"
Ca
USA
2199 Posts |
Posted - Dec 31 2009 : 11:20:35 AM
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Here's to Aria and her incredable mom Julia! imagine me holding my glass up high
"Treat the earth well, it was not given to you by your parents, it was loaned to you by your children" |
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gramadinah
True Blue Farmgirl
3557 Posts
Diana
Orofino
ID
USA
3557 Posts |
Posted - Dec 31 2009 : 12:01:07 PM
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Julia I am glad to hear of the good news.
Diana
Farmgirl Sister #273 |
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deeredawn
True Blue Farmgirl
2306 Posts
Dawn
Cordova
TN
USA
2306 Posts |
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tribalcime
True Blue Farmgirl
2963 Posts
lisa
lexington
ky
USA
2963 Posts |
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dutchy
True Blue Farmgirl
4427 Posts
4427 Posts |
Posted - Jan 01 2010 : 04:56:31 AM
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Julia, this post just put a big grin on my face . I am SO thankful to the good Lord that HE is watching over Aria (and your whole family) during these times  .
Hugs from Marian/Dutchy, a farmgirl from the Netherlands :)
My personal blog:
http://just-me-a-dutch-girl.blogspot.com/
Almost daily updates on me and mine :)
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Edited by - dutchy on Jan 01 2010 04:56:59 AM |
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Beemoosie
True Blue Farmgirl
2077 Posts
Bonnie
New York
USA
2077 Posts |
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ceejay48
Farmgirl Legend/Schoolmarm/Sharpshooter
13625 Posts
CeeJay (CJ)
Dolores
Colorado
USA
13625 Posts |
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kristin sherrill
True Blue Farmgirl
11303 Posts
kristin
chickamauga
ga
USA
11303 Posts |
Posted - Jan 01 2010 : 09:12:51 AM
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Julia, what a great thing to look forward to! I am so glad ya'll are on the road to better days.
Hugs to you and your family.
Kris
Happiness is simple. |
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knittingmom
True Blue Farmgirl
665 Posts
AnneMarie
Edmonton
Alberta
Canada
665 Posts |
Posted - Jan 01 2010 : 1:05:25 PM
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I'm glad to hear that Aria is plugging along. March isn't that far away. You and your family are in my prayers.
"There is no foot so small that it cannot leave an imprint on this world" |
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RuralSuburbia
True Blue Farmgirl
251 Posts
Leslie
Northern CA
USA
251 Posts |
Posted - Jan 02 2010 : 6:11:37 PM
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God bless your whole family. You've all been through so much. I'm glad to hear that things are looking up for your baby, and thank you for the update!! <3
*I've got stars in my eyes and exactly $1 in my pocket!* |
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Bear5
True Blue Farmgirl
13055 Posts
Louisiana/Texas
USA
13055 Posts |
Posted - Jan 02 2010 : 8:26:54 PM
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Julia:
I will continue to pray for Aria and you. You are such a brave woman. God's grace is felt through your written words.
Marly
"It's only when we truly know and understand that we have a limited time on earth- and that we have no way of knowing when our time is up- that we will begin to live each day to the fullest, as if it was the only one we had." Elisabeth Kurler-Ross |
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Family Matters: Aria and the end of 2009 |
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Aria and the end of 2009
