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82kygal
True Blue Farmgirl

548 Posts

Laura
Somerset Kentucky
USA
548 Posts

Posted - Nov 16 2009 :  05:05:51 AM  Show Profile
I had my thyroid "killed" with RAI and at first I didn't notice anything. Now I am hypo instead of hyper and was put on pills. I am noticing that my feet hurt, my leg and arms are always tired and sore and my joints ache I haven't seen my Dr. about this yet I am just now learning that the pain is from my Thyroid. Have any of you had this problem? I know Dutchy, you said you had some problems. That was you wasn't it? Any way I would love some comment on the subject because I am not happy with this. Thanks much for your input.

With God, all things are possible. (Mark 10:27)
What ever you are, be a good one. (Abe Lincoln)

dutchy
True Blue Farmgirl

4427 Posts



4427 Posts

Posted - Nov 16 2009 :  05:50:15 AM  Show Profile
Yup, it was (also) me. First Hyper, now Hypo, had the RAI treatment as well. A now on the little blue pills (NO!! Not THAT kind, lol) and need to have them re-issued. Last check-up I was going into Hyper again, so need to go on with these for 6 months (4 to go) and then another checkup. Maybe that time Hypo again, lol.

My side-effects are a mix of Hyper and hypo:
Always cold
Always tired
Weight loss
Memory loss
Aches and pains all over
Eye problems (other than the one I was born with) etc etc

Better go see your docter anyways, he/she might tell you more about the side effects.

Hugs from me to you

Hugs from Marian/Dutchy, a farmgirl from the Netherlands :)

My personal blog:
http://just-me-a-dutch-girl.blogspot.com/

Almost daily updates on me and mine :)

Edited by - dutchy on Nov 16 2009 05:51:26 AM
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twink
True Blue Farmgirl

131 Posts

Deb
Rapid City SD
USA
131 Posts

Posted - Nov 16 2009 :  11:22:42 AM  Show Profile
Maybe both of you could talk to your MD or ND about Armour Thyroid.

http://thyroid.about.com/cs/thyroiddrugs/a/armour.htm

-Deb

http://healthtalk.6.forumer.com/index.php

Shoot for the moon. Even if you miss you'll land amongst the stars. - Anonymous
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Beverley
True Blue Farmgirl

2707 Posts

Beverley
atlanta Michigan
USA
2707 Posts

Posted - Nov 16 2009 :  5:01:30 PM  Show Profile
I take thyroid meds and never put 2 and 2 together as to why I always ache all over. My joints and legs in particular. I am going to ask my dr about this the next time I go in. thanks for making me more aware..

Folks will know how large your soul is by the way you treat a dog....Charles F. Doran
beverley baggett Beverley with an extra E...
http://bevsdoggies.googlepages.com/
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N@n
True Blue Farmgirl

223 Posts


Hackett Arkansas
USA
223 Posts

Posted - Nov 16 2009 :  5:46:13 PM  Show Profile
Good evening Laura,
I haven't had a thyroid for 12 years and have to keep an eye on my thyroid levels. Just in case they didn't tell you when they gave you the thyroid replacement, you must take it on an empty stomach. They told me that after I had been on it for about 6 months. Wait for an hour after you take them before you eat.
Nancy in Ark

keep searchin'-it's out there somewhere.
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dutchy
True Blue Farmgirl

4427 Posts



4427 Posts

Posted - Nov 16 2009 :  11:26:55 PM  Show Profile
Yup, an empty stomach, it is the first thing I do.

. That is SO opposed to regular meds that is almost never taken on an empty stomach!

Hugs from Marian/Dutchy, a farmgirl from the Netherlands :)

My personal blog:
http://just-me-a-dutch-girl.blogspot.com/

Almost daily updates on me and mine :)
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82kygal
True Blue Farmgirl

548 Posts

Laura
Somerset Kentucky
USA
548 Posts

Posted - Nov 17 2009 :  06:28:25 AM  Show Profile
Thanks for all the great info gals. I did learn after about three weeks of taking it with breakfast that it needs to be on an empty stomach. So now I do.
Nancy after 12 years how has that gone for you?
Beverly I never did either because my husband has been sick with the same symptoms so I wasnt sure what I had until I talked with a friend of mine who is just starting the journey of thyroid problems she has the same muscle pain. Then I put 2 and 2 together.
Deb, I will talk to my dr. about the Armour Thyroid Thanks for the great info

Did any of you gain/ lose a lot of weight?


With God, all things are possible. (Mark 10:27)
What ever you are, be a good one. (Abe Lincoln)
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dutchy
True Blue Farmgirl

4427 Posts



4427 Posts

Posted - Nov 17 2009 :  08:02:03 AM  Show Profile
I am not sure about the weight loss, I have always been skinny but maybe it HAS to do with the thyroid as well, part of it I think. Never had the weight gain (wish I did, lol)

Hugs from Marian/Dutchy, a farmgirl from the Netherlands :)

My personal blog:
http://just-me-a-dutch-girl.blogspot.com/

Almost daily updates on me and mine :)
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Annika
True Blue Farmgirl

5602 Posts

Annika

USA
5602 Posts

Posted - Nov 17 2009 :  08:39:01 AM  Show Profile
I was skinny until my thyroid when bottoms up and I went from around 123 pounds to over 200 pounds I have really wondered about the thyroid and all of the tiredness, temperature sensitivity and aches. I am currently losing weight and will hopefully regain my health.
I have recently found that they thyroid controls a whole bunch of things and when it goes down the drain, you have to struggle to find the right balance.

Annika
Farmgirl & sister #13

Simplicity is the ultimate sophistication. ~Leonardo DaVinci
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Diane B Carter
True Blue Farmgirl

1270 Posts

Diane
Blasdell N.Y.
USA
1270 Posts

Posted - Nov 17 2009 :  3:58:05 PM  Show Profile
I've had my thyroid out for about 20 years. I had had the radiation which lasted about 8 years. I went into Thyroid storm and the Dr came into the room and said to me oh your poor dad when I told him you would probley die he just fell apart. I was so mad I called for my dad to come back to my area in the ER, he did and I could tell he had really been crying. I told dad I had 2 sons to raise and I wasn't leaving here until I knew they were OK. I will always have to take a few pills, one for my thyroid, 3 for my calicum ( they accidently took out all my calicium glands) and Vit.D just because of my thyroid. I also have aches and pain not sure if it's because I'm getting older, weight up & down all the time. and finding the perfect balance is hard. But I am thank-ful thats all I have wrong with me, in my neck anyways. I hope you feel better soon.

Hope all your days are Sunnydays.
dianebcarterhotmailcom.blogspot.com
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82kygal
True Blue Farmgirl

548 Posts

Laura
Somerset Kentucky
USA
548 Posts

Posted - Nov 18 2009 :  06:31:10 AM  Show Profile
I tell you what the thyroid is a crazy little thing that can cause great big problems. I gained 30lbs in about two months scared the you know what out of me. I am stableized on the weight now and am working on bringing it back down but its not easy. I guess this is going to be a rest of my life pain in the hinny.

With God, all things are possible. (Mark 10:27)
What ever you are, be a good one. (Abe Lincoln)
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nubidane
True Blue Farmgirl

2875 Posts

Lisa
Georgetown OH
2875 Posts

Posted - Nov 18 2009 :  07:24:58 AM  Show Profile
I have had 2 out of 3 tests come back abnormal for my thyroid, but have no symptoms, so I am not going to take anything yet. My hubby works for the company that makes Armour, so I can get it for free! It is a natural alternative, that is actually FDA approved, so that is kinda nice. But at this point I am being stubborn. I can't see taking a med when I feel fine. I have gained some weight, but I attribute that to perimenopause, extra busy work & little exercise this year.
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twink
True Blue Farmgirl

131 Posts

Deb
Rapid City SD
USA
131 Posts

Posted - Nov 18 2009 :  08:37:43 AM  Show Profile
quote:
Originally posted by Diane B Carter

I've had my thyroid out for about 20 years. I had had the radiation which lasted about 8 years. I went into Thyroid storm and the Dr came into the room and said to me oh your poor dad when I told him you would probley die he just fell apart. I was so mad I called for my dad to come back to my area in the ER, he did and I could tell he had really been crying. I told dad I had 2 sons to raise and I wasn't leaving here until I knew they were OK. I will always have to take a few pills, one for my thyroid, 3 for my calicum ( they accidently took out all my calicium glands) and Vit.D just because of my thyroid. I also have aches and pain not sure if it's because I'm getting older, weight up & down all the time. and finding the perfect balance is hard. But I am thank-ful thats all I have wrong with me, in my neck anyways. I hope you feel better soon.

Hope all your days are Sunnydays.
dianebcarterhotmailcom.blogspot.com



I would have sued the doctor AND the hospital. A doctor doesn't "accidently" remove the parathyroid glands. Those glands serve an important function in the body and are a part of the endocrine system.

As for his comment to your Dad, I would have slapped his face, and THEN sued him again. There is simply no excuse, other than pure arrogance, for behavior like that.

Here is a link where you might want to look around:
http://parathyroid.com/parathyroid-function.htm

I sure hope you never have to go back to that hospital....

-Deb

http://healthtalk.6.forumer.com/index.php

Shoot for the moon. Even if you miss you'll land amongst the stars. - Anonymous
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twink
True Blue Farmgirl

131 Posts

Deb
Rapid City SD
USA
131 Posts

Posted - Nov 18 2009 :  08:44:49 AM  Show Profile
In my post above I almost said that the surgeon was probably incompetent, but then I changed my mind. I should have said it, because it's probably true.

http://parathyroid.com/hypoparathyroidism.htm

[excerpt from the above link:]
"Hypoparathyroidism is the combination of symptoms due to inadequate parathyroid hormone production (Hypo-parathyroid-ism). This is a very rare condition, and almost always occurs because of damage or removal of parathyroid glands at the time of parathyroid or thyroid surgery. This bears repeating: When people have too little parathyroid hormone, it is almost always because they had thyroid or parathyroid surgery and all four parathyroid glands were removed or injured. This is a mistake by the surgeon and is NOT supposed to happen."
[end of excerpt]

Interesting reading on hypOthyroidism, which is what you now face.

-Deb

http://healthtalk.6.forumer.com/index.php

Shoot for the moon. Even if you miss you'll land amongst the stars. - Anonymous

Edited by - twink on Nov 18 2009 1:05:04 PM
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82kygal
True Blue Farmgirl

548 Posts

Laura
Somerset Kentucky
USA
548 Posts

Posted - Nov 18 2009 :  10:39:48 AM  Show Profile
Diane I agree with Deb, That Dr. should be in trouble if not for the mistake but also for what he did to your dad that is horrible. I Didn't think Thyroid problems were a death sentence. I dont think Dr.s really think about the stress a patient and their family is going through when they are in the hospital or Drs. office. I met a new Dr. when my hubby was in the hospital in August he was a great "kid" I told him he would make a great dr. if he made sure he listens and feels compasion for his patients which he already did so he was on the right track.Wish more were like this.

With God, all things are possible. (Mark 10:27)
What ever you are, be a good one. (Abe Lincoln)
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Diane B Carter
True Blue Farmgirl

1270 Posts

Diane
Blasdell N.Y.
USA
1270 Posts

Posted - Nov 18 2009 :  1:01:17 PM  Show Profile
The doctor was a she, the nurses draw straws on who has to take care of her patients. She is considered one of the best endocronoligest(not sure how to spell it.) I was raised you don't sue, and it was about 20 years ago. My son is an attorney. He didn't listen as well as I did. Yes you can die from thyroid problems, my heart rate was over 250, according to the machine I was hooked up to. I took a valium 5 po then they gave me valium 10 IV, X's 2. I was so hyper but couldn't do anything moving exhusted me and I couldn't stop moving, it was awful. I still have b/w every 4 months because they need to keep an eye on my calicum & thyroid, I did stop going to her after she yelled at a lady in the waiting room. I had a 1pm appt. got their about 12:50 and a older lady was walking in so I helped her as she was carrying her knitting bag, she told me her appt. was'nt until 2:30 but her daughter had to be somewhere so instead of waiting at home she choose to wait at the dr.s. When dr Z came out she started yelling at the lady for being to early. I tried to explain it to the dr when she was seeing me but she didn't want to hear it. It was the last time I saw here. My general MD has me seeing another specialist just for the blood work part of it. Most people do not have a hard time with it I was the exception unfortunally. My mom and my 2 aunts also have thyroid problems. I think they should do a TSH b/w every year as a part of a routine exam. So if your reading this ask your dr for it its a cheap test.
Today, it's my eye's I'm not sure what is causing this one but they are itchy and swollen with hugh bags of fluid under them. I'm trying allergy medicine and if that doesn't work I will have to go to my MD and I really don't want to do that.
Oh dear hubby is on his way home I need to get off this machine and I still want to read the above link.

Hope all your days are Sunnydays.
dianebcarterhotmailcom.blogspot.com
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dutchy
True Blue Farmgirl

4427 Posts



4427 Posts

Posted - Nov 18 2009 :  1:06:51 PM  Show Profile
I have the bloodworks test every year too. Now I need to go in 4 months because last time it still was a little off so she wanted to control it. My dr. is a good one fortunately.

Hugs from Marian/Dutchy, a farmgirl from the Netherlands :)

My personal blog:
http://just-me-a-dutch-girl.blogspot.com/

Almost daily updates on me and mine :)
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Diane B Carter
True Blue Farmgirl

1270 Posts

Diane
Blasdell N.Y.
USA
1270 Posts

Posted - Nov 18 2009 :  1:39:26 PM  Show Profile
Deb that link was great, I would go into the hospital at least 2Xs a years all doubled over, my body would tingle, I couldn't walk, and I couldn't explain why, the dr's thought I was having seizures. I was always tested for drug over dose and that was demeaning. I have finally found a doctor that I really like and as long as I take calicum and Vit.D I'm better but as soon as the tingling starts I drink milk, chew calicum and take extra Vit.D and call my DH who has picked me up off the floor at work, in a resturant/bar.(I don't drink) When it hits it hits fast. That link explained it well. The dr I now go to who sent me to the specialist explained it all to me about 6 months ago. I was so happy to know it wasn't a mental breakdown like I had been told a few times. Ok I typed to much and have to go sorry for the long typing it is so much better when you know your not alone.

Hope all your days are Sunnydays.
dianebcarterhotmailcom.blogspot.com
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twink
True Blue Farmgirl

131 Posts

Deb
Rapid City SD
USA
131 Posts

Posted - Nov 18 2009 :  1:41:54 PM  Show Profile
quote:
Originally posted by Diane B Carter

The doctor was a she, the nurses draw straws on who has to take care of her patients. She is considered one of the best endocronoligest(not sure how to spell it.) I was raised you don't sue, and it was about 20 years ago. My son is an attorney. He didn't listen as well as I did. Yes you can die from thyroid problems, my heart rate was over 250, according to the machine I was hooked up to. I took a valium 5 po then they gave me valium 10 IV, X's 2. I was so hyper but couldn't do anything moving exhusted me and I couldn't stop moving, it was awful. I still have b/w every 4 months because they need to keep an eye on my calicum & thyroid, I did stop going to her after she yelled at a lady in the waiting room. I had a 1pm appt. got their about 12:50 and a older lady was walking in so I helped her as she was carrying her knitting bag, she told me her appt. was'nt until 2:30 but her daughter had to be somewhere so instead of waiting at home she choose to wait at the dr.s. When dr Z came out she started yelling at the lady for being to early. I tried to explain it to the dr when she was seeing me but she didn't want to hear it. It was the last time I saw here. My general MD has me seeing another specialist just for the blood work part of it. Most people do not have a hard time with it I was the exception unfortunally. My mom and my 2 aunts also have thyroid problems. I think they should do a TSH b/w every year as a part of a routine exam. So if your reading this ask your dr for it its a cheap test.
Today, it's my eye's I'm not sure what is causing this one but they are itchy and swollen with hugh bags of fluid under them. I'm trying allergy medicine and if that doesn't work I will have to go to my MD and I really don't want to do that.
Oh dear hubby is on his way home I need to get off this machine and I still want to read the above link.

Hope all your days are Sunnydays.
dianebcarterhotmailcom.blogspot.com



It doesn't matter if it was 20 years ago -- what I meant is that you should have sued immediately, whether 20 years or 20 days ago. What difference does it make that the doctor was a woman? You feel you can't sue a woman or even slap a woman? Heh, both have been done ...

I was raised in a "non-sue" family, as well - my dad was an attorney and he didn't like our family to be in confrontation, as he was in it every day. But -- in an instance like that, if more people would have sued the woman doctor maybe she would have been more human and not so arrogant. Losing a court case tends to take the wind out of them a little, but just a little. ; ^)

Also, did anyone in the hospital ever stop to think that you may have been having an allergic reaction to the valium? My oldest sister had the same experience and it took her almost three days to calm down. She was literally crawling the walls.

TSH testing, in and of itself, is useless. Most blood thyroid tests are pretty standard, although pretty useless. It's all we have though.

http://www.stopthethyroidmadness.com/tsh-why-its-useless/

and:

http://thyroid.about.com/b/2008/08/14/the-thyroid-tsh-reference-range-why-the-so-called-experts-are-still-totally-confused.htm

You can find many references to the uselessness of these tests by doing a general web search and typing in the words "useless TSH testing" or anything similar. It's amazing that a lot of people know this but the medical industry refuses to comply. A change in the reference range is all it would take.

-Deb

http://healthtalk.6.forumer.com/index.php

Shoot for the moon. Even if you miss you'll land amongst the stars. - Anonymous
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Purdy Farm Girl
Farmgirl in Training

16 Posts

Laura
Oxford NY
USA
16 Posts

Posted - Nov 18 2009 :  6:15:35 PM  Show Profile  Send Purdy Farm Girl an AOL message  Click to see Purdy Farm Girl's MSN Messenger address  Send Purdy Farm Girl a Yahoo! Message
font=Georgia][/font=Georgia]
I have had hypo since I had my 5th child. I haven't ever had to increase the dosage in 11 years, but the leg aches, the eyes seeing FUNNY, back and hip aches seem to be more prominent now. I am very weak feeling on some days, I started to go to the gym to try to get some sort of exercise in, even though I waitress and run after a 2 yr old all day it isn't exercise for strength. I sometimes have funny squeaks in my throat or achy feelings in the thyroid area. My biggest complaints are memory loss, feeling the heat as never before, and the frozen from the inside out feeling that only thyroid sufferers can relate to. I didn't have the weight issue with hypo, I actually lost 10 lbs a week right after I had a baby and got skinnier than ever before, went to the dr said I totally cant remember anything, weight is falling off and I am so cold I feel like I live in a freezer, tell me I need prozac or there is something wrong with me. Thank God there was. I couldn't of lived much longer that way. It runs in families and children can get it. My niece was 14 with Graves diease and my son was 12 when sensitivity to the nipples was so painful for a shirt to rub them, I knew then it wasn't normal. My newphews heart went bad and is on some meds for that for the rest of his life. My grandmother got Altzheimers, I worked in a unit full of them. I noticed when I passed out meds that alot of them had hypothroidism. Is there a huge link?? Lets hope they find it before we get to that stage if there is. I dont know if I have helped but we seem to have a family chock full of hypo people. Laura

*Purdy Valley Farms* Laura*
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N@n
True Blue Farmgirl

223 Posts


Hackett Arkansas
USA
223 Posts

Posted - Nov 18 2009 :  7:09:36 PM  Show Profile
Hey Laura and all, I am doing very well after my thyroid removal. I had thyroid cancer and after the removal of the gland, I also had radiation therapy as I had lymph node involvement as well. It was a really scary time to say the least, but I had great docs and my surgeon was a wonder. My endroconologist is a perfectionist so he keeps me right where I need to be. This year, after over twelve years, I was finally pronounced cancer free!!!! I don't even think about it much any more but boy it took quite a while after the surgery to get back to normal. I would say two to three years before it really settled out. I am 61 years old and I have never had as much hair on my head as I do now. Thyroid controls everything in your body I think, including your hair. It is a vital organ but thankfully one you can do without thanks to the pharmaceutical world. Just keep in mind, Diane, it is not a quick fix and you will have to keep an eye on it the rest of your life.
Have a blessed and restful night, Nancy in Ark

keep searchin'-it's out there somewhere.
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pugmama
Farmgirl at Heart

3 Posts

Faith
Klamath Falls Oregon
USA
3 Posts

Posted - Nov 18 2009 :  9:58:34 PM  Show Profile
quote:
Originally posted by nubidane

I have had 2 out of 3 tests come back abnormal for my thyroid, but have no symptoms, so I am not going to take anything yet. My hubby works for the company that makes Armour, so I can get it for free! It is a natural alternative, that is actually FDA approved, so that is kinda nice. But at this point I am being stubborn. I can't see taking a med when I feel fine. I have gained some weight, but I attribute that to perimenopause, extra busy work & little exercise this year.



i was curious, you said your husband works for the armour company. where has all the armour gone? it seems theres a severe shortage and i cant even get a prescription for it. im on a generic brand of synthroid, which im not happy about ,along with cytomel. i want the natural. if you have any info, please let me know. thank you

Faith
Farmgirl #547


"Be the change you wish to see in the world." - Gandhi
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82kygal
True Blue Farmgirl

548 Posts

Laura
Somerset Kentucky
USA
548 Posts

Posted - Nov 19 2009 :  06:10:50 AM  Show Profile
Man I hate that all of you have had problems like myself, but it is nice to know we are not alone in this. I appreciate hearing what everyone has to say about this subject. At least I know it is not all in my head.
Nancy I am so happy you are now cancer free what a relief. I have a freind of mine that is just starting on that journey she is to young for this stuff (24yrs old).
Diane, I am happy you moved on to a new Dr. I too was raised in a no sue home and have raised my kids that way to. I have had some scary mess ups with Dr.s one that could have cost my son his life when he was born. But all in in all it is just best to move on.

With God, all things are possible. (Mark 10:27)
What ever you are, be a good one. (Abe Lincoln)
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twink
True Blue Farmgirl

131 Posts

Deb
Rapid City SD
USA
131 Posts

Posted - Nov 19 2009 :  06:53:55 AM  Show Profile
quote:
Originally posted by 82kygal

I too was raised in a no sue home and have raised my kids that way to. I have had some scary mess ups with Dr.s one that could have cost my son his life when he was born. But all in in all it is just best to move on.


As I said, I'm not necessarily for jumping up and suing people for no reason. I was raised that same way. BUT it's the reason doctors are getting away with things that shouldn't be happening. It has a domino effect when people don't at least complain to the hospital board or something, if you don't want to sue. IF a doctor does something that should be reported and it isn't, it's like reinforcing that they don't have to follow the rules. It's the same reason doctors rarely report adverse events with drugs and vaccinations. (VAERS is a good subject to search for more information).

It is not always best to move on. People down the road pay when you keep silent.

-Deb

http://healthtalk.6.forumer.com/index.php

Shoot for the moon. Even if you miss you'll land amongst the stars. - Anonymous
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82kygal
True Blue Farmgirl

548 Posts

Laura
Somerset Kentucky
USA
548 Posts

Posted - Nov 19 2009 :  09:07:40 AM  Show Profile
Because they were not sued does not necessarily mean things were kept silent he moved on within the year as I was not the only one with a problem with him. As far as I know he is not practicing medicine now. There is more than one way to skin a cat.

With God, all things are possible. (Mark 10:27)
What ever you are, be a good one. (Abe Lincoln)
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twink
True Blue Farmgirl

131 Posts

Deb
Rapid City SD
USA
131 Posts

Posted - Nov 19 2009 :  09:15:30 AM  Show Profile
quote:
Originally posted by 82kygal

Because they were not sued does not necessarily mean things were kept silent he moved on within the year as I was not the only one with a problem with him. As far as I know he is not practicing medicine now. There is more than one way to skin a cat.

With God, all things are possible. (Mark 10:27)
What ever you are, be a good one. (Abe Lincoln)



"he moved on within a year ..."

So, he moved on and then someone nailed him, or did he quit medicine of his own volition?

Kewl! At least he's not in the game anymore and THAT'S what's important, AFAIC. Even in things like medicine, supposedly upright and honest, watchdogs need to be busy and alert.

-Deb

http://healthtalk.6.forumer.com/index.php

Shoot for the moon. Even if you miss you'll land amongst the stars. - Anonymous
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