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Here's to Your Health:  Raynard's Syndrome  |
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Trace
True Blue Farmgirl
247 Posts
Tracey
Canton
New York
USA
247 Posts |
 Posted - Aug 23 2007 : 12:24:54 PM
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Does anyone else here have to deal with this? What a pain in my toes this is, lol not to mention, it is pretty dang annoying to find all of a sudden, 1,2 or 3 of your toes have gone numb and your not out standing in knee deep snow.
Summer has not been too bad. I do find it does happen in the other 3 seasons. For me, it is only my toes that are affected with it. My hands,fingers and butt just get cold, without the numbing and such involved.
I haven't found anything 100% helpful yet. And thought I would bring it up here, in case someone here deals with it.
I did try a homeopathic thyriod supplement, but that didn't seem to do anything. I am taking magnesaum and fish oil. I have read that Ugg boots really help BUT they are soooooooooooo expensive and am not really sure you can wear them outside for working in. Wool socks and felt boots don't help either for me.
Living on a farm, staying indoors 24/7 is not a reality, lol
Anyone have any suggestions???????
Trace
pics from my world.. http://s4.photobucket.com/albums/y144/tra-dun/ |
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Utahfarmgirl
True Blue Farmgirl
1940 Posts
Portland
Oregon
USA
1940 Posts |
Posted - Aug 23 2007 : 3:59:15 PM
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I have it. It's a part of my fibromyalgia and one of the main reasons why I moved back out west from Central New York. It's agony.
I've tried a lot of things, too, and the only things I find useful are those heat packs that you put in your shoes and your gloves and they keep your fingers and toes warmer for a while. Other than that, you just have to stay out of very cold weather. Mine even acts up when I touch frozen food. When you are suffering with it, do not put your hands or toes in very hot water. You will burn them. Use only warm water until they warm up.
Good luck, Trace. I'm sorry you have to go through this.
Farmgirl hug,
Patricia
check out my etsy site http://ThePlayfulFarmgirl.etsy.com
Take me home, country roads |
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Persephone
True Blue Farmgirl
172 Posts
Katrina
Indiana
USA
172 Posts |
Posted - Aug 23 2007 : 6:02:55 PM
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| I only know of this in connection with breastfeeding. I have this in my nipples, which causes random pain, and blanching. It's not too serious for me though, it doesn't affect anything, really. |
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Aunt George
True Blue Farmgirl
1476 Posts
Georgann
Midlothian
VA
1476 Posts |
Posted - Aug 23 2007 : 6:11:36 PM
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Hi Trace....Is it Raynaud's syndrome? Here is a very informative website:
http://www.medic8.com/healthguide/articles/raynauds.html
Keep your feet warm, don't wear binding socks or boots, Be sure to get plenty of Vitamin B6, Stop Smoking if you smoke...not just cut down, but stop if you can. There is a companion syndrome to this called: Berger's Disease that affects your fingers
Please take care of yourself and visit your MD as needed. I've seen people lose their fingers and toes and more with this condition. Not trying to scare you....that is worst case scenario of course.
I really wish you the best with this. Patricia had some very great advice for managing it. If you are having an attack....get those toes warmed up!! Just don't use hot water!!!
http://auntgeorgeshouse.blogspot.com/index.html
http://thefabricho.blogspot.com/
http://auntgeorge.etsy.com
"Made With Love" |
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Trace
True Blue Farmgirl
247 Posts
Tracey
Canton
New York
USA
247 Posts |
Posted - Aug 23 2007 : 7:24:39 PM
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Thanks Girls. Patrica, I have been dealing with this for years. I think it is a result of near frost bite/frost nip. For years I didn't realize it was a syndrome, I just thought it was ME, lol. I got sick and tired of dealing with it and did research online(I have pretty much given up on doctors) And was very surprised this was REAL and not something in my head.
Last winter, it was a very odd feeling to do some of the jazzercise routines with numb toes. I read therre is a cream to use on your feet, that warms the skin. I think I am going to invest that 15.00 for a tube.
Thanks Aunt Geroge for the info!! What scared me the year before last was, when I had a flare up, it really affected the outter edge of one toe. It became red,swollen and painful oncew the blood returned and then it started to itch. The next day, that sore spot developed a blister and turn a very dark shade of blue (this is when I thought, nice.. my toe will fall off) it hurt for days and finally the blister wnet down and the skin peeled off. The toe is normal looking and acting these days. But it scared the cr*p ouuta me. I was so worried it would happen again like that. I tried to keep inside on bad days but noticed it happend inside also.
Patrica, how do you keep those warmer things from slipping in your boots? Do they stay in place? I did buy a pair of electric socks but then someone told me they were not a good idea, you could burn your feet. Beats me, lol.
pics from my world.. http://s4.photobucket.com/albums/y144/tra-dun/ |
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Trace
True Blue Farmgirl
247 Posts
Tracey
Canton
New York
USA
247 Posts |
Posted - Aug 23 2007 : 8:10:34 PM
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Patrica, I was just doing some searching online for anything that might help us. I came across this "Far Infrared Socks" at place called firheals.com sells them for 17.95. I found other places selling them for 39.00. So for 18.00, I am going to order them and give them a try.
Thought you might be interested.
Trace
pics from my world.. http://s4.photobucket.com/albums/y144/tra-dun/ |
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Marybeth
True Blue Farmgirl
6418 Posts
Mary Beth
Stanwood
Wa 98292
USA
6418 Posts |
Posted - Aug 23 2007 : 8:25:18 PM
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My youngest had that as a child. We are all very warmblooded and here is this poor baby with freezing extremeties. . finally took here to the doc and he called it Raynauds Phenomenom with the pronounciation raynos. anyway all you can do is keep the feet and hands covered and warm. She had purple toes and fingers. I think she fortunately has outgrown it to a degree. She still is colder than the rest of us. Never in shorts but does wear t tops in the summer. MB
www.strawberryhillsfarm.blogspot.com
www.day4plus.blogspot.com www.holyhouses-day4plus.blogspot.com
"Life may not be the party we hoped for...but while we are here we might as well dance!" |
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babysmama
True Blue Farmgirl
931 Posts
Elizabeth
Iowa
931 Posts |
Posted - Sep 20 2007 : 07:02:29 AM
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I have had a mild condition of this on my hands and feet since I was young. They wouldn't turn quite blue but they would get awfully cold and turn really red when they were warming up. I never knew what it was until I stumbled across it in a book. Now it has been much better since the birth of my children but my three year old daughter has it. It again, is a mild case but her hands and feet get cold and turn red. We just keep her warm and have her wear mittens outside and socks inside.
-Elizabeth |
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janetinva123
True Blue Farmgirl
363 Posts
Janet
newport news
va
USA
363 Posts |
Posted - Sep 21 2007 : 09:51:24 AM
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I have a friend that has a severe case of the colds. She had a brain injury after a car crash and for years could not get diagnosed. They finally told her she Epstein Barr. But no matter where she goes she has to take blankets even in the summer. She wears wool and a hat in the summer too. Her toes are so bad they just curl up. We can't ride in the same car because I am extremly hot so she needs the heat and I need the AC.
Jc
http://beloved-creations.blogspot.com
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sewgirlie
True Blue Farmgirl
1894 Posts
Sheryl-lyn
Calverton
NY
USA
1894 Posts |
Posted - Sep 21 2007 : 5:36:33 PM
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| My husband has this also. He has to take medication when it starts to flare up, and he tries to keep warm all the time. It can be painful at times and he used to get so nervous about it. It also comes on with stress, which is why it can occur in the summer as well. |
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KellyA
True Blue Farmgirl
237 Posts
Kelly
Johnsonville
NY
USA
237 Posts |
Posted - Sep 24 2007 : 12:55:30 PM
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I have it, too. Basically my feet turn purplish in the slightest chill, and numbness at very odd times. I have invested in a lot of Smartwool socks and warm baths...so far, that has been enough.
Kelly
When a cookbook is in hand, life is good! |
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Rebekka Mae
True Blue Farmgirl
965 Posts
Rebekka
Moscow
ID
USA
965 Posts |
Posted - Oct 01 2007 : 6:02:10 PM
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Uggs are wonderful and would keep your feet cozy- my son has a mild case of raynauds as well and keeping sheepskin on his feet definitely prevents the problem. I found a pair of UGG-like boots at costco for about $30 last year and I know that many general stores carry a less expensive brand- they just must be real wool inside. I have to say that the real Uggs will last many more years than the less expensive ones but they should all keep your toes warm this winter;) I wear mine in the snow and cold barefoot as they get really warm with socks.
Wishing you the best, Rebekka
Nature does not ask permission. Blossom and birth whenever you feel like it!
Clarissa Pinkola Estes |
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Past Blessings
True Blue Farmgirl
1083 Posts
Brenda
Orchard Prairie
WA
USA
1083 Posts |
Posted - Oct 07 2007 : 10:42:34 PM
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I have dealt with this since I was a teen and my mom has always had it, so it may be genetic. Mine is mainly my fingers. They turn this weird whitish yellow . . . like there is no blood in them and get tingly. I didn't know the term until recent years. Staying active, so that you have good circulation is important. For me it has been more of an irritant than a true problem. I just say, "oh look, I have dead old lady fingers again!" From any research I have done there is little risk with this, unless you truly have heart related circulation issues, so I have never let it bother me. It is kind of a novelty for me . . . when they turn that pale yellow they look kind of like vienna fingers! LOL!
Hugs & blessings!
Brenda
Past Blessings . . . Celebrating Life as it used to be . . . when people loved God, loved their families and loved their country. |
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emma.birdwhistle
True Blue Farmgirl
187 Posts
Elizabeth Ann
Ontario
Canada
187 Posts |
Posted - Oct 09 2007 : 06:41:53 AM
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I'm told I've got this Reynaud's thing. It mostly shows up in my toes, which get painfully itchy and red when they get too cold. I managed to keep it in check last winter by being careful to only wear pure wool socks, day and night. The "foot doctor" mentioned that "painting" 2% iodine (I'm fairly sure she said 2%...it wasn't less than that, anyway) on my toes might help with the itching, but I haven't had the need to try this yet. A friend with Reynaud's swears by acupuncture, which apparently cured her completely. I have not tried this either, since the wool socks have fixed it for me so far. I have a feeling this condition might be genetic, since my father and my mother's father both appear to have had it, though they never knew what it was.
- Elizabeth
If one advances confidently in the direction of his dreams, and endeavors to live the life which he has imagined, he will meet with a success unexpected in common hours. - Thoreau
http://resolutelyoutmoded.etsy.com
http://myspace.com/elizabethannbarlow |
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Past Blessings
True Blue Farmgirl
1083 Posts
Brenda
Orchard Prairie
WA
USA
1083 Posts |
Posted - Oct 18 2007 : 08:33:14 AM
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I agree that it is probably genetic . . . my mom has it also.
Hugs & blessings,
Brenda
Past Blessings . . . Celebrating Life as it used to be . . . when people loved God, loved their families and loved their country. |
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Tina Michelle
True Blue Farmgirl
6948 Posts
Tina
sunshine state
FL
USA
6948 Posts |
Posted - Oct 18 2007 : 10:29:10 AM
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my sister has it to where her fingers will turn white..like a plastic white color(think science skeleton model white)...my little baby girls fingers will turn white too after a bath sometimes. I just keep massaging them until the color returns..usually in less than five minutes.
My sister had an episode that lasted a while though. Dr. said it was Reynaud's. She now wears gloves in the winter..and she is in South Florida...but it is an inherited thing in some cases. My step daddy had it, and I remember my mom also wearing sweaters even in the summer time.
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Here's to Your Health: Raynard's Syndrome |
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Raynard's Syndrome
