| T O P I C R E V I E W |
| momshopsalotta |
Posted - May 06 2010 : 1:49:18 PM
At my 16 year old daughters yearly check-up the doctor found a huge amount of protien in her urine. He did blood and urine tests, sent them to the lab saying "nothing to worry about, see ya in a month." Three days later his office called and said to come in that day. Doctor said my daughter is passing more than 300 times the protien than is allowable and said that he had never seen anything like this in his practice. He said usually Diabetics pass some protien but not ever near what my daughter is passing and she is not diabetic. She shows no symptoms but she needs to see a Pediatric Nephrologist (kidney specialist). We finally found one across the state line in VA. This may be very serious and I am very worried. She has her appointment in Friday 05/07. Will let you know how everything goes but I would appreciate a couple of prayers on her behalf.
Thanks,
Connie |
| 25 L A T E S T R E P L I E S (Newest First) |
| prayin granny |
Posted - Aug 31 2010 : 11:23:45 AM
Connie, I am so sorry. We all will be praying. I have a daughter dealing with also a form of auto-immune disease. Please keep us updated and let us know! Blessings, linda
Country at Heart |
| Diane B Carter |
Posted - Aug 31 2010 : 05:05:28 AM
Yeah!!!!!!!!!!Keeping you and your daughter in my prayers.
Hope all your days are Sunnydays.
dianebcarterhotmailcom.blogspot.com |
| staci860 |
Posted - Aug 17 2010 : 3:04:28 PM
Amen!! Woo-hoo - so happy for you - doing a happy dance and shedding tears of joy for you both! Continued prayers for remission and good health for you both.
Love in Christ and may He be glorified in all things.
Blessings, staci FG# 973
:o )
Joshua 24:15 - ...choose this day whom you will serve,...as for me and my house, we will serve the Lord.
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| kristin sherrill |
Posted - Aug 17 2010 : 2:24:21 PM
Amen! What a great update, Connie! That is so awesome for both of you. Good for you that you got the help you needed or it might not have been a good outcome. I can't wait to hear more from you now. Keep us posted on ya'lls progress, ok?
Hugs, Kris
Happiness is simple. |
| clothedinscarlet |
Posted - Aug 17 2010 : 12:12:15 PM
Praise the Lord! Sounds like a miracle after all!!! Now we will pray for continued healing. COMPLETE remission! How excited you must be, Connie. And I'm glad to hear you're taking care of yourself as well. Thank you so much for bringing us an update! Visit us often and keep us updated on her (and your) progress.
Our Great and Awesome Father, we THANK YOU for Your healing touch. Thank You, Lord that the reports we receive that bring fear are NOT Your reports and that we can believe and rely upon Your mighty hands for a greater outcome. We thank You that Connie's daughter is healed and we pray that her healing will continue and last for ever. We also pray for Connie's continued peace and healing in her own body. Give her faith to continue relying on You each and every day and endurance as she continues to take ahold of her and her daughter's health in their eating/exercise habits. Thank You, Father, for our sister Connie and the miracle You have given her in a healthy daughter. I pray that her testimony of healing will give faith and hope to many others who are battling with a discouraging report from a doctor. May You be glorified! In Jesus' name I pray, AMEN!
Farmgirl Sister #1110
Siobhan - AKA Liza-Jane (my farmgirl name), wife to my best friend, Trent, and mommy to Camden (11/28/05) and Bennett (7/11/07). and Truman (7/28/09) |
| momshopsalotta |
Posted - Aug 17 2010 : 10:35:59 AM
Have not updated for a while. I thought I should share the good news! My daughter is in remission. Her dosage of steroids had been slowly reduced and the weight gain and medication induced Acne are improving. She gained about 22 pounds but has taken it well. Her attitude during her illness was not so great and she flunked 10th grade. Even though she passed all her subjects she refused to do the 10th grade part of her graduation project! Her pediatric nephrolgist said that alot of children who develop FSGN never go into remission and if she can stay in remission for two years she may remain in remission forever.
Another blessing that occured this summer was that I was not taking care of myself and became sick. My doctor discovered that my blood sugar was over 400 and I had ignored every symptom of Diabetes. My A1c was 11.6 (supposed to be 7) and I am on Insulin on a temporary basis. I have lost 20 pounds, completely changed my eating habits and my daughter and I work out and swim at the Y several times a week. In spite of the difficult times my family experienced during the last several months I have made improvements in my life and now feel better that I have in years. It was in great part to the support and encouragement of my farmgirls sisters that gave me the strength to grow aand change during adversity and to respect the Lord's blessing for improving my daughters health. God bless you all! |
| pamcook |
Posted - Jun 29 2010 : 5:43:29 PM
Connie - just found this thread - I am praying for a miracle. This is not God's will that one of His children would have such a horrible condition. I am praying that you are surrounded by people who love you and will uplift you. I am praying for only caring, brilliant caregivers for your daughter. Hugs to both of you.
www.ikat.org
www.longaberger.com/pamcook |
| msdoolittle |
Posted - Jun 29 2010 : 1:43:37 PM
Hi Connie,
I will send some more FarmGirl love and prayers to you and your daughter. Life is certainly not 'fair'. We are all thinking of you in your time of need. Love to your DD!
FarmGirl #1390
www.mylittlecountry.wordpress.com |
| Diane B Carter |
Posted - Jun 29 2010 : 05:25:58 AM
I am so sorry you and your daughter have to go through this. Life seems so unfair at times. I will keep you and her in my daily prayers. (BIG HUG) to both of you.
Hope all your days are Sunnydays.
dianebcarterhotmailcom.blogspot.com |
| debtea2 |
Posted - Jun 16 2010 : 6:58:35 PM
dear connie
prayers that all turns out well and so miracle will happen
blessing deborah
http://jerseyfarmgirl.blogspot.com/
inch by inch we find our way
jersey farmgirl
#1330
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| Annika |
Posted - Jun 16 2010 : 6:34:20 PM
Connie...Hugs and love from one farmgirl to another. I'm at a loss for words and teary, but I wanted you to know that I and many other sisters will be here for you.
I'm so sorry that this has happened to your precious daughter. My prayers are coming with all of the others.
Blessings
Annika
Farmgirl & sister #13
Palouse Prairie Girls Chapter
http://palouseprairiegirls.blogspot.com/
http://prairiegirlsjournal.blogspot.com/
Simplicity is the ultimate sophistication. ~Leonardo DaVinci
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| violetrose |
Posted - Jun 16 2010 : 6:12:47 PM
Hi Connie, I have been thinking about you and your daughter and wanted you to know. Keeping ya'll in my prayers.
If you will e-mail me your address, I'd love to send a card to your daughter.
Hugs and prayers,
Ruth
God loves each one of us as if there were only one of us!
St. Augustine |
| clothedinscarlet |
Posted - May 30 2010 : 07:56:25 AM
Oh good idea, Ruth. I would love to send her a card!
Farmgirl Sister #1110
Siobhan - AKA Liza-Jane (my farmgirl name), wife to my best friend, Trent, and mommy to Camden (11/28/05) and Bennett (7/11/07). and Truman (7/28/09) |
| violetrose |
Posted - May 29 2010 : 7:58:29 PM
Connie, I am so sorry to hear your news. Not what we had been praying for. We will continue to lift your daughter in prayer and for much wisdom for her doctors.
Will you post your address so we can send cards to her?
Hugs and many prayers,
Ruth
God loves each one of us as if there were only one of us!
St. Augustine |
| Kirksmom71 |
Posted - May 29 2010 : 10:41:40 AM
Thinking of you!
My best to all,
Mel
Sassy City Girl with Farmgirl Fantasies! |
| sherrye |
Posted - May 29 2010 : 06:37:46 AM
connie my heart aches for you right now. i am sooo very sorry. wish i could help you more. i will carry you in my heart and pray for you to have the strength you need to do this.knowledge is power. at least you know what you are dealing with. auto immune can be fought. if i can help please ask. sincerely sherrye
the learn as we go silk purse farm
farmgirl #1014
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| kristin sherrill |
Posted - May 29 2010 : 06:36:37 AM
Connie, I will be praying for her and for you right now.
Kris
Happiness is simple. |
| clothedinscarlet |
Posted - May 28 2010 : 8:49:41 PM
Connie, I am so sorry that you got such a disheartening diagnosis for your daughter. I am going to add her to my nightly prayer and have some friends and family lift her up in prayer too. Hang in there mama. Hold onto hope. Let us know what you hear from the nephrologist. (((Hugs)))
Farmgirl Sister #1110
Siobhan - AKA Liza-Jane (my farmgirl name), wife to my best friend, Trent, and mommy to Camden (11/28/05) and Bennett (7/11/07). and Truman (7/28/09) |
| staci860 |
Posted - May 28 2010 : 09:26:08 AM
Connie, I just found this thread and have added your family to my prayers. I can't begin to imagine the fear you are all experiencing. Please know your FG sisters will be lifting you up before the Lord.
staci FG# 973
Joshua 24:15 - ...choose this day whom you will serve,...as for me and my house, we will serve the Lord.
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| momshopsalotta |
Posted - May 28 2010 : 07:49:52 AM
+update+
Just got the final diagnosis. My daughter has Focal Segmental Glomerulo Sclerosis, commonly referred to as FSGS. This is an uncommon form of Chronic kidney disease found primarily in males and most common in African American males (go figure, my daughter is a very pale, blond, blue-eyes girl). Only 5400 cases are diagnosed in a year. Her case is an agressive form and overy half of the filters in her kidney are dead due to scarring. Without treatment, her kidneys will fail in, on average, 5-6 years, but with the amount of scarring Kira has, kidney failure would happen in about thre years. Treatment is non-exsistant, as it is an auto-immune disease disease in which the body attacks itself. Massive doses of steroids can sometimes put it into remission (in about 50-60% of cases). She at some point will almost certainly need diaylsis. Kidney transplantation is also an option, but since it is an auto-immune disease, often the body will attack the new, good kidney. This will most certainly affect her life as will the side effect of massive doses of Prednisone. I'm cryinmg an shaking so badly thazt I really can't write more right now but I appreciate the c are and concern you have given us. Will see the Nephrologist next week and will update them. Not the diagnosis or prognosis we had hoped for we will deal with the cards we are delt. |
| violetrose |
Posted - May 27 2010 : 4:56:59 PM
Hi Connie, You and your DD continue to be in my prayers! Have you heard anything on her biopsy?
Hugs and Prayers,
Ruth
God loves each one of us as if there were only one of us!
St. Augustine |
| Kirksmom71 |
Posted - May 26 2010 : 1:45:26 PM
Continue praying for you and your dear daughter.
My best to all,
Mel
Sassy City Girl with Farmgirl Fantasies! |
| classygram |
Posted - May 26 2010 : 05:43:26 AM
Prayers continuing for you DD and for you. Will be checking in to see how results are.
Hugs,Brenda
"What lies behind us, and what lies before us are small matter compared to what lies within us."
Ralph Waldo Emerson
Seek reasons to Love..In every sigment of everyday-look for something that brings forth within you a feeling of Love-Abraham Hicks |
| momshopsalotta |
Posted - May 26 2010 : 05:39:21 AM
+update+
Had biopsy yesterday. Doctor said she may get the results today and if so will let me know. I will post as soon as I get the diagnosis. |
| violetrose |
Posted - May 25 2010 : 10:59:48 AM
Hi Connie, Been praying and thinking about your daughter - have you received any new news? Has she had her biopsy?
Hugs, Ruth
God loves each one of us as if there were only one of us!
St. Augustine |
