| T O P I C R E V I E W |
| hudsonsinaf |
Posted - May 25 2016 : 03:09:26 AM
Morning everyone! Back in February I requested prayers for my cousin's nephew, Blake. As a newborn it was discovered he did not have an anus and ended up with a colostomy bag. He also has numerous other issues they are going to have to deal with over the years to come.
Yesterday afternoon, Blake started to have seizures and was turning blue! After multiple seizures in the ER, they finally were able to get him stable enough to transport him to a children's hospital. They are thinking he may have meningitis. They did a spinal tap last night, but I have not heard the results yet.
Please pray for this sweet three month old boy and his family! They have been through so much! please also pray for wisdom for the doctors as they try to figure out what is going on and the best way to treat him!
UPDATE: I just heard from my cousin about Blake... After numerous tests, he has been diagnosed with lissencephaly... also known as smooth brain syndrome. It is terminal. Most children do not live past the age of ten. His is so severe that he will probably never get past 3 to 5 months old developmentally... he is three months old now.
I honestly do not think I can say anything else about it as I have hit the point where I am just not thinking straight. Please please please pray for this baby and his family!
1/17 Update - Blake has been in the hospital for the past couple weeks... He had a heart cath last week and a stent put in. Things were looking better... they tried to take him off the vent... and he coded. THey put him back on and got him stable. They think it is due to pulmonary hypertension. They are going to give him time for that to improve before they try it again...
1/21 Update: Here is the latest update: "The team met with us and they believe giving Blake extra time on the vent to really let his heart and lungs rest to let the veins relax and the arteries to 'remold' will do some good. The have started a new medication for the pulmonary hypertension. We should start to see improvement in a couple weeks. The doctors are amazing. They are with us and stand behind us. We've made it clear that if or when they think Blake is not progressing we will have another talk. Blake is also battling a second infection. He was put back on antibiotics so that is fighting against him. He's struggling with the fluid overload again so a little puffy in his eyes. And sadly he was becoming so agitated when he would wake up, they had to restart the paralytic. But it should be helpful to ensure he is resting and the pulmonary hypertension does not flare up with every move. So the plan is to continue resting for 2.5 to 3 weeks on the vent to try one more time for extubation."
At about 8 PM, EST, Blake passed away. Please continue to pray for his family... his mom Jessie, Dad Steve, and older brother Mason
~ Shannon, Sister # 5349
Farmgirl of the Month - January 2016
http://hudson-everydayblessings.blogspot.com/ |
| 25 L A T E S T R E P L I E S (Newest First) |
| Needle |
Posted - Jan 29 2017 : 06:03:56 AM
Shannon, prayers to you and Blake's family.
Farm Girl Sister #6566
The road of life is made smoother when traveled with someone you love. |
| Red Tractor Girl |
Posted - Jan 28 2017 : 08:33:38 AM
Prayers of comfort to Blake's family and to you. He was a little fighter for sure!
Winnie #3109
Red Tractor Girl
Farm Sister of the Year 2014-2015 |
| forgetmenot |
Posted - Jan 27 2017 : 5:05:47 PM
Shannon, praying for Blake and his family, including you.
Farmgirl sister #3926
"Courage is not the absence of fear, but the belief that something is more important than fear." Ambrose Red Moon |
| ceejay48 |
Posted - Jan 27 2017 : 3:05:15 PM
Shannon,
Praying for Blake's family and for you and your family! Sweet peace in the arms of Jesus!
CJ
..from the barefoot farmgirl in SW Colorado...sister chick #665.
2010 Farmgirl Sister of the Year
Mother Hen: FARMGIRLS SOUTHWEST HENHOUSE
my aprons - http://www.facebook.com/FarmFreshAprons
living life - www.snippetscja.blogspot.com
from my heart - www.fromacelticheart.blogspot.com
from my hubby - www.aspenforge.blogspot.com |
| Bear5 |
Posted - Jan 27 2017 : 12:50:07 PM
Shannon, you and your family will be in my prayers. Hugs.
Marly
"It's only when we truly know and understand that we have a limited time on earth- and that we have no way of knowing when our time is up- that we will begin to live each day to the fullest, as if it was the only one we had." Elisabeth Kurler-Ross |
| hudsonsinaf |
Posted - Jan 25 2017 : 1:52:48 PM
Thank you all for your sweet words and prayers! Blake is healthy and happy in the Savior's arms <3
~ Shannon, Sister # 5349
Farmgirl of the Month - January 2016
http://hudson-everydayblessings.blogspot.com/ |
| Ninibini |
Posted - Jan 25 2017 : 1:21:24 PM
Shannon, this is so heartbreaking. I am and will continue to pray for everyone. God bless and help all of you through this. Much love, Nini
Farmgirl Sister #1974
God gave us two hands... one to help ourselves, and one to help others!
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| ddmashayekhi |
Posted - Jan 25 2017 : 04:39:14 AM
I'm so very sorry for all of you. Blake fought so hard. All of you are in my prayers.
Dawn in IL
"Don’t let anyone ever tell you that this country isn’t great, that somehow we need to make it great again" Michelle Obama |
| HealingTouch |
Posted - Jan 24 2017 : 7:22:37 PM
So sorry for everyone. Praying for comfort and peace.
Be Blessed and Be a Blessing,
Darlene
Sister 1922
October 2016 Farmgirl of the month
John 11: 35 Jesus wept.
When Satan's knocking at your door, just say "Jesus will you get that for me?"
When it gets to hard to stand, Kneel!
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| nndairy |
Posted - Jan 24 2017 : 12:19:22 PM
Praying for all of you.
~Heather
Farmgirl Sister #4701
September 2014 Farmgirl of the Month
http://nndairy.blogspot.com/
"The purpose of life is to enjoy every moment" - Yogi teabag
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| DandeeRose |
Posted - Jan 24 2017 : 03:50:52 AM
Oh my..... <3 Prayers....
Many Blessings- Alicia #5232 FGOTM May 2016
<3 OUR FARM <3
https://www.facebook.com/WinklerDerBauernhof/
https://derbauernhofsite.wordpress.com
https://www.etsy.com/shop/DandeeRose Farmgirl Accessories and more!
Life isn't about waiting for the storm to pass; it's about learning to dance in the rain." |
| Tumbleweed |
Posted - Jan 23 2017 : 7:29:14 PM
Hi Shannon
My deepest sympathy for Blake's family. He is strong and healthy again. My prayers for his family during this very difficult time.
TW
The fun begins where the pavement ends! |
| hudsonsinaf |
Posted - Jan 22 2017 : 7:35:41 PM
Thank you ladies! They put him on albumin today as a last resort. It looks like he is losing the battle. But we are hopeful!
~ Shannon, Sister # 5349
Farmgirl of the Month - January 2016
http://hudson-everydayblessings.blogspot.com/ |
| dena91 |
Posted - Jan 22 2017 : 4:50:57 PM
Oh Shannon, just read the situation with Blake. Since 3 of our 4 children have special needs, i have been around and heard many difficult stories from other families with extra needs kiddos; the ones like Blake's are always the hardest. Praying for them now; my heart just breaks for them.
Dena
Farmgirl 5620 |
| darlenelovesart |
Posted - Jan 22 2017 : 4:31:30 PM
Oh that is so hard to hear about, poor little Blake such a tiny one to have to deal with such problems. prayers going up for him and his family,
God's blessings to you all.
I have learned that to have a good friend is the purest of all God's gifts, for it is a love that has no exchange of payment.
by Frances Farmer
Just follow God unquestioningly.
Because you love Him so, for if you trust His judgment there is nothing you need to know.
I trust in you Jesus... |
| Blessed in Colorado |
Posted - Jan 22 2017 : 07:00:25 AM
PrAyers and love to the family!
Hugs,
Deb
#1582
Blessed in Colorado
FGOTM, Septembe, 2012
"You must do the thing you think you can not do." Eleanor Roosevelt
Women are Angels, and when someone breaks our wings We simply continue to fly on our Broomsticks. We're flexible like that!
http://shopus.longaberger.com/mountainwingslongabergerbaskets
http://myworld.ebay.com/debbt |
| Needle |
Posted - Jan 22 2017 : 05:01:06 AM
Shannon, Prayers for Blake, your family and the doctors. Sounds like that little guy is a fighter, and you have some good docgtors.
Farm Girl Sister #6566
The road of life is made smoother when traveled with someone you love. |
| hudsonsinaf |
Posted - Jan 21 2017 : 7:22:47 PM
Here is the latest update: "The team met with us and they believe giving Blake extra time on the vent to really let his heart and lungs rest to let the veins relax and the arteries to 'remold' will do some good. The have started a new medication for the pulmonary hypertension. We should start to see improvement in a couple weeks. The doctors are amazing. They are with us and stand behind us. We've made it clear that if or when they think Blake is not progressing we will have another talk. Blake is also battling a second infection. He was put back on antibiotics so that is fighting against him. He's struggling with the fluid overload again so a little puffy in his eyes. And sadly he was becoming so agitated when he would wake up, they had to restart the paralytic. But it should be helpful to ensure he is resting and the pulmonary hypertension does not flare up with every move. So the plan is to continue resting for 2.5 to 3 weeks on the vent to try one more time for extubation."
~ Shannon, Sister # 5349
Farmgirl of the Month - January 2016
http://hudson-everydayblessings.blogspot.com/ |
| Cozynana |
Posted - Jan 21 2017 : 7:01:55 PM
Breaks my heart, praying for a miracle. |
| levisgrammy |
Posted - Jan 20 2017 : 4:25:05 PM
Praying for Blake and his family and doctors.
~Denise~
Farmgirl Sister #43
"Thy Word is a lamp unto my feet and a light unto my path." Psalm 119:105
http://www.ladybugsandlilacs.blogspot.com/
http://www.torisgram.etsy.com |
| MaryJanesNiece |
Posted - Jan 20 2017 : 12:44:34 PM
Shannon, can they get a second opinion? Removing his lung is a dramatic thing. I would want to see another doctors opinion. Poor little guy. Hopefully he will be home and healthy for his birthday and his brother can see him soon. I feel so bad for them all. This is definitely a tough situation.
Krista |
| levisgrammy |
Posted - Jan 20 2017 : 05:01:07 AM
Praying for Blake and his family and doctors.
~Denise~
Farmgirl Sister #43
"Thy Word is a lamp unto my feet and a light unto my path." Psalm 119:105
http://www.ladybugsandlilacs.blogspot.com/
http://www.torisgram.etsy.com |
| ruthie218 |
Posted - Jan 19 2017 : 6:40:10 PM
I am so sorry to hear this. Prayers for all.
Ruthie Ann
Farmgirl sister#4072 |
| hudsonsinaf |
Posted - Jan 19 2017 : 1:51:06 PM
Thank you ladies!
Krista - he will be a year old next month! He has his really good days, though he is definitely delayed. His family is not doing well at all! THe doctors' last suggestion was to remove his lung on the one side as that is where the pulmonary hypertension is and see if that helps. Basically they are grasping at straws. We are all just kinda numb and drained, but obviously his parents and older brother (Mason is 6) are doing the worst. Masn has not been able to see Blake since he went in the hospital, as a) he is in ICU and b) his parents haven't wanted him to see him with all the tubes and wires in him.
~ Shannon, Sister # 5349
Farmgirl of the Month - January 2016
http://hudson-everydayblessings.blogspot.com/ |
| MaryJanesNiece |
Posted - Jan 19 2017 : 12:49:37 PM
Poor little guy. Sending many prayers.
Shannon, isn't he almost a year old now? Aside from this recent incident how has he been doing? How is his family?
Krista |
