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Hogs & Quiches & Prayers Round-up:  Blake passed away tonight :'(  |
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hudsonsinaf
True Blue Farmgirl
3162 Posts
Shannon
Rozet
Wyoming
USA
3162 Posts |
 Posted - May 25 2016 : 03:09:26 AM
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Morning everyone! Back in February I requested prayers for my cousin's nephew, Blake. As a newborn it was discovered he did not have an anus and ended up with a colostomy bag. He also has numerous other issues they are going to have to deal with over the years to come.
Yesterday afternoon, Blake started to have seizures and was turning blue! After multiple seizures in the ER, they finally were able to get him stable enough to transport him to a children's hospital. They are thinking he may have meningitis. They did a spinal tap last night, but I have not heard the results yet.
Please pray for this sweet three month old boy and his family! They have been through so much! please also pray for wisdom for the doctors as they try to figure out what is going on and the best way to treat him!
UPDATE: I just heard from my cousin about Blake... After numerous tests, he has been diagnosed with lissencephaly... also known as smooth brain syndrome. It is terminal. Most children do not live past the age of ten. His is so severe that he will probably never get past 3 to 5 months old developmentally... he is three months old now.
I honestly do not think I can say anything else about it as I have hit the point where I am just not thinking straight. Please please please pray for this baby and his family!
1/17 Update - Blake has been in the hospital for the past couple weeks... He had a heart cath last week and a stent put in. Things were looking better... they tried to take him off the vent... and he coded. THey put him back on and got him stable. They think it is due to pulmonary hypertension. They are going to give him time for that to improve before they try it again...
1/21 Update: Here is the latest update: "The team met with us and they believe giving Blake extra time on the vent to really let his heart and lungs rest to let the veins relax and the arteries to 'remold' will do some good. The have started a new medication for the pulmonary hypertension. We should start to see improvement in a couple weeks. The doctors are amazing. They are with us and stand behind us. We've made it clear that if or when they think Blake is not progressing we will have another talk. Blake is also battling a second infection. He was put back on antibiotics so that is fighting against him. He's struggling with the fluid overload again so a little puffy in his eyes. And sadly he was becoming so agitated when he would wake up, they had to restart the paralytic. But it should be helpful to ensure he is resting and the pulmonary hypertension does not flare up with every move. So the plan is to continue resting for 2.5 to 3 weeks on the vent to try one more time for extubation."
At about 8 PM, EST, Blake passed away. Please continue to pray for his family... his mom Jessie, Dad Steve, and older brother Mason
~ Shannon, Sister # 5349
Farmgirl of the Month - January 2016
http://hudson-everydayblessings.blogspot.com/ |
Edited by - hudsonsinaf on Jan 23 2017 7:12:22 PM |
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ddmashayekhi
True Blue Farmgirl
4759 Posts
Dawn
Naperville
Illinois
USA
4759 Posts |
Posted - May 25 2016 : 04:41:39 AM
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Praying for all them Shannon.
Dawn in IL
"We can complain because rose bushes have thorns, or rejoice because thorn bushes have roses." Abraham Lincoln |
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DandeeRose
True Blue Farmgirl
1509 Posts
Alicia
Charlestown, IN
1509 Posts |
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KristiW
Moderator/Farmgirl True
639 Posts
Kristine
MaryJanesFarm
USA
639 Posts |
Posted - May 25 2016 : 07:46:21 AM
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That's terrible news, keeping the family in my thoughts today.
Kristi
Farmgirl Sister #6
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Marcy
True Blue Farmgirl
2701 Posts
Marcy
Tiverton
Rhode Island
USA
2701 Posts |
Posted - May 25 2016 : 09:42:18 AM
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I will be keeping everyone in my thoughts and prayers! Please let us know how he is doing.
hugs,
Marcy
Farmgirl #170
FGOTM August 2012
Since you get more joy out of giving joy to others, you should put a good deal of thought into the happiness that you are able to give...Eleanor Roosevelt
http://marcyscreativeworld.blogspot.com/ |
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crafter
True Blue Farmgirl
2313 Posts
lori
Fort Atkinson
Wisconsin
USA
2313 Posts |
Posted - May 25 2016 : 10:42:29 AM
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praying right now!
God has promised strength for the day, rest for the labor, light for the way, grace for the trials, help from above, unfailing sympathy and undying love.
We are here to love each other, serve each other and uplift each other. |
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MaryJanesNiece
True Blue Farmgirl
7231 Posts
Krista
Utah
USA
7231 Posts |
Posted - May 25 2016 : 10:42:32 AM
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Oh how sad. I hope everything will be okay. That little boy is one tough cookie. Keeping him in my thoughts. Keep us posted.
Krista |
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Calicogirl
True Blue Farmgirl
5216 Posts
Sharon
Bruce Crossing
Michigan
USA
5216 Posts |
Posted - May 25 2016 : 1:45:10 PM
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Shannon, I am so sorry to hear about little Blake. I am praying that the Lord would heal that sweet baby and strengthen him. Also praying for comfort and strength for his parents and the whole family. And peace in knowing that the Lord is in control. I am also praying that the Lord would grant the doctors wisdom and knowledege.
Farmgirl Sister #5392
By His Grace, For His Glory
~Sharon
http://amerryheartjournal.blogspot.com/
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Edited by - Calicogirl on May 25 2016 1:46:32 PM |
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Bear5
True Blue Farmgirl
13055 Posts
Louisiana/Texas
USA
13055 Posts |
Posted - May 25 2016 : 1:47:06 PM
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Prayers going up for Blake. Please, keep us posted.
Marly
"It's only when we truly know and understand that we have a limited time on earth- and that we have no way of knowing when our time is up- that we will begin to live each day to the fullest, as if it was the only one we had." Elisabeth Kurler-Ross |
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hudsonsinaf
True Blue Farmgirl
3162 Posts
Shannon
Rozet
Wyoming
USA
3162 Posts |
Posted - May 25 2016 : 7:18:03 PM
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I just heard from my cousin about Blake... After numerous tests, he has been diagnosed with lissencephaly... also known as smooth brain syndrome. It is terminal. Most children do not live past the age of ten. His is so severe that he will probably never get past 3 to 5 months old developmentally... he is three months old now.
I honestly do not think I can say anything else about it as I have hit the point where I am just not thinking straight. Please please please pray for this baby and his family!
~ Shannon, Sister # 5349
Farmgirl of the Month - January 2016
http://hudson-everydayblessings.blogspot.com/ |
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Bonnie Ellis
True Blue Farmgirl
2474 Posts
Bonnie
Minneapolis
Minnesota
USA
2474 Posts |
Posted - May 25 2016 : 9:04:53 PM
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Shannon, they are in my prayers.
grandmother and orphan farmgirl |
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crafter
True Blue Farmgirl
2313 Posts
lori
Fort Atkinson
Wisconsin
USA
2313 Posts |
Posted - May 26 2016 : 07:51:39 AM
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I pray for peace for your dear dear family. Please know that God's loving arms are wrapped around you and He is with you always!!
God has promised strength for the day, rest for the labor, light for the way, grace for the trials, help from above, unfailing sympathy and undying love.
We are here to love each other, serve each other and uplift each other. |
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darlenelovesart
True Blue Farmgirl
7714 Posts
darlene
Loleta
California
USA
7714 Posts |
Posted - May 26 2016 : 12:24:03 PM
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Prayers continuing.
Blessings
I have learned that to have a good friend is the purest of all God's gifts, for it is a love that has no exchange of payment.
by Frances Farmer
Just follow God unquestioningly.
Because you love Him so, for if you trust His judgment there is nothing you need to know.
I trust in you Jesus... |
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HealingTouch
True Blue Farmgirl
3448 Posts
Darlene
Kunkletown
Pa
USA
3448 Posts |
Posted - May 26 2016 : 8:42:51 PM
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Praying for God's intervention. Blake is perfect in His site. There is power in prayer.
Be Blessed and Be a Blessing,
Darlene
Sister 1922
God first, everything else after!
When Satan's knocking at your door, just say "Jesus will you get that for me?"
When it gets to hard to stand, Kneel!
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mrssarahhall
True Blue Farmgirl
1272 Posts
Sarah
Longmont
Colorado
USA
1272 Posts |
Posted - May 27 2016 : 2:27:01 PM
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Thoughts and prayers for sweet Blake and for your family. <3
Sarah
Farmgirl # 5223
"For beautiful eyes, look for the good in others; for beautiful lips, speak only words of kindness; and for poise, walk with the knowledge that you are never alone." - Audrey Hepburn
All good things are wild and free- Henry David Thoreau
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Dreamer42
True Blue Farmgirl
2694 Posts
April
Central
Oregon
USA
2694 Posts |
Posted - May 28 2016 : 8:15:53 PM
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Loving thoughts and prayers for baby Blake...
Dreamer42 |
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ruthie218
True Blue Farmgirl
1425 Posts
Ruthie Ann
Indiana
USA
1425 Posts |
Posted - Jan 18 2017 : 11:33:49 AM
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Praying for baby and family.
Farmgirl sister#4072 |
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Ninibini
True Blue Farmgirl
7577 Posts
Nini
Pennsylvania
USA
7577 Posts |
Posted - Jan 18 2017 : 6:02:39 PM
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Oh, Shannon... Blake and all of you who love him are in my prayers. I am so, so sad to hear this news. Please make sure your cousin knows we are all lifting them up in prayer. God bless them... Hugs - Nini
Farmgirl Sister #1974
God gave us two hands... one to help ourselves, and one to help others!
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MaryJanesNiece
True Blue Farmgirl
7231 Posts
Krista
Utah
USA
7231 Posts |
Posted - Jan 19 2017 : 12:49:37 PM
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Poor little guy. Sending many prayers.
Shannon, isn't he almost a year old now? Aside from this recent incident how has he been doing? How is his family?
Krista |
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hudsonsinaf
True Blue Farmgirl
3162 Posts
Shannon
Rozet
Wyoming
USA
3162 Posts |
Posted - Jan 19 2017 : 1:51:06 PM
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Thank you ladies!
Krista - he will be a year old next month! He has his really good days, though he is definitely delayed. His family is not doing well at all! THe doctors' last suggestion was to remove his lung on the one side as that is where the pulmonary hypertension is and see if that helps. Basically they are grasping at straws. We are all just kinda numb and drained, but obviously his parents and older brother (Mason is 6) are doing the worst. Masn has not been able to see Blake since he went in the hospital, as a) he is in ICU and b) his parents haven't wanted him to see him with all the tubes and wires in him.
~ Shannon, Sister # 5349
Farmgirl of the Month - January 2016
http://hudson-everydayblessings.blogspot.com/ |
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ruthie218
True Blue Farmgirl
1425 Posts
Ruthie Ann
Indiana
USA
1425 Posts |
Posted - Jan 19 2017 : 6:40:10 PM
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I am so sorry to hear this. Prayers for all.
Ruthie Ann
Farmgirl sister#4072 |
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levisgrammy
True Blue Farmgirl
9436 Posts
Denise
Beavercreek
Ohio
USA
9436 Posts |
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MaryJanesNiece
True Blue Farmgirl
7231 Posts
Krista
Utah
USA
7231 Posts |
Posted - Jan 20 2017 : 12:44:34 PM
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Shannon, can they get a second opinion? Removing his lung is a dramatic thing. I would want to see another doctors opinion. Poor little guy. Hopefully he will be home and healthy for his birthday and his brother can see him soon. I feel so bad for them all. This is definitely a tough situation.
Krista |
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levisgrammy
True Blue Farmgirl
9436 Posts
Denise
Beavercreek
Ohio
USA
9436 Posts |
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Cozynana
True Blue Farmgirl
1123 Posts
Kem
1123 Posts |
Posted - Jan 21 2017 : 7:01:55 PM
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| Breaks my heart, praying for a miracle. |
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hudsonsinaf
True Blue Farmgirl
3162 Posts
Shannon
Rozet
Wyoming
USA
3162 Posts |
Posted - Jan 21 2017 : 7:22:47 PM
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Here is the latest update: "The team met with us and they believe giving Blake extra time on the vent to really let his heart and lungs rest to let the veins relax and the arteries to 'remold' will do some good. The have started a new medication for the pulmonary hypertension. We should start to see improvement in a couple weeks. The doctors are amazing. They are with us and stand behind us. We've made it clear that if or when they think Blake is not progressing we will have another talk. Blake is also battling a second infection. He was put back on antibiotics so that is fighting against him. He's struggling with the fluid overload again so a little puffy in his eyes. And sadly he was becoming so agitated when he would wake up, they had to restart the paralytic. But it should be helpful to ensure he is resting and the pulmonary hypertension does not flare up with every move. So the plan is to continue resting for 2.5 to 3 weeks on the vent to try one more time for extubation."
~ Shannon, Sister # 5349
Farmgirl of the Month - January 2016
http://hudson-everydayblessings.blogspot.com/ |
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Hogs & Quiches & Prayers Round-up: Blake passed away tonight :'( |
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Blake passed away tonight :'(
