Does anyone know anything about this condition? I think I have a friend who has had it or something like it for years.I bet it's caused by a food additive or a chemical.I used to think it was a made up name for a puzzling illness .But Mayo clinic told me it was a real illness but they didn't know what caused it.I tried to reserch it at the Library once and they said it shows up in areas in clusters sometime.But they had no answers either.
Hi Emily: I have RA and Fibromyalgia with chronic fatigue, and it's not pretty. I can remember back to the age of four and having these symptoms. I've always felt like I have the flu off and on....and the pain is almost unbearable sometimes. The doctor has to be careful what medicine he puts me on because of my size. I'm 5 ft. 1 inch and weigh roughly 110 pounds and some medicines make me sicker than I already am. I take herbal suppliments. Nothing really helps. I wake up every morning feeling worse than when I went to bed because sleep just eludes me sometimes...most of the time. Different odors and smells can make me nauseous in a matter of seconds. I get migraines. If I sit too long nothing wants to move. Sometimes my feet won't bend. But, I just thank God that He allows me to get up every morning and do what I need to do. They think that I'm so used to the pain and the tiredness that I've just accepted it and don't realize that I'm pushing myself day after day. Maya Angelou said on Oprah one day, "even though I'm in pain, I don't have to be a pain" and that's basically how I live my life. How nice of you to care about your friend so much that you want to educate yourself about her condition. I wish her the best. Susan