| T O P I C R E V I E W |
| hudsonsinaf |
Posted - Jul 10 2014 : 04:23:20 AM
9/25 Took Aly to Developmental Peds today. They agree she is quite behind in her milestones and thinks she needs PT. Great. But then they say she needs a brain MRI and to see neurology. Okay..... why? I get informed that they will be looking for a lesion. My first thought is cancer, and I voice that. Her response was, "oh no. We will be looking for a lesion from some type of trauma." WHAT!?!? Basically they are telling me they are seeing if she is abused!?!? I am terribly terribly frustrated! I am with my children 24/7. Why is it automatically abuse when a child does not fit textbook???? Anyways, please pray for us. The MRI will have to be with sedation and is scheduled for a month from now on the 29th.... and at almost lunch time with nothing to eat after midnight.... seriously do not think that is going to work! But anyways, I am now officially STRESSED!
Hi all! My youngest child, Aly, turned one the end of June. Like my other children, she has always been skinny and tall for her age... But now she has quit growing and is considered FTT (Failure to Thrive). There will be tests run on Friday morning and then as soon as MUSC can get it scheduled, she will also be tested for cystic fibrosis. On one hand, we are praying it is due to my adrenal issues, and on the other hand I feel like I am failing her. I know that God will see us through all of this, as He always does and He promises not to leave us. But please pray for Aly! She is such a sweet and content child! She loves to make people laugh and loves to give cuddles. She is now 28.3 inches long and barely over 15.5 pounds.
~ Shannon
http://hudson-everydayblessings.blogspot.com/ |
| 25 L A T E S T R E P L I E S (Newest First) |
| Calicogirl |
Posted - Oct 02 2014 : 09:30:44 AM
Dear Shannon,
I am keeping Aly in prayer as well as you and the whole family. I am praying that the Lord would grant you peace in your heart and remove any stress. Remember to hold every thought captive and think on Him. The Lord has a plan and if it is His it has to be a good one. Praying for encouragement for you sweetie! Hang in there!
Farmgirl Sister #5392
By His Grace, For His Glory
~Sharon
http://amerryheartjournal.blogspot.com/
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| Ninibini |
Posted - Sep 26 2014 : 12:45:24 PM
Shannon, dear sister... Winnie's right. Please don't think their need to look for a lesion or evidence of trauma necessarily means they are seeking signs of abuse. In all honesty, if your daughter was abused, they would know from other things that transpire when she's around you. Besides, if you DID abuse your child, would you really be taking her to the hospital seeking help and healing for her? No! People who abuse their kids try to HIDE any trauma they've caused. For anyone to suggest that you may have abused her is absolutely ludicrous; and if they did, they should be called to the carpet for so doing! Truthfully, there are many medical conditions that can lead to lesions in the brain - not just head injury. Lesions in the brain can interfere with neurological processes which can sometimes be helped, and other times cannot. I'm sure they're just trying to cover all the bases to ensure they provide Aly with the best care and treatment possible. Honest.
As far as Aly's separation anxiety... My GOODNESS! Any child who loves their parent will go through this. You should NOT feel you need to offer any explanations or excuses for her wanting you to stay close by! When our son was little we tried a preschool at a local church. No sooner would I leave than he'd be hightailing it right out the door behind me! One of the teachers literally kept her sneakers on in the morning just in case she'd have to run after him! LOL! Crazy worry-wart me, I would sit in the parking lot the entire time because I feared he'd "escape" trying to find me! I think it's wonderful that Aly loves you so much. She won't always have this attachment, believe me. As she grows, you are going to LONG for these days, so enjoy them while you can, sister! And please: don't you even allow anyone to convince you her reaction is unhealthy! My goodness! She's in a strange, sterile place, with strange noises and sounds, with all sorts of people fluttering around her, poking and prodding her, hooking her up to machines... what kid WOULDN'T experience anxiety if her mother had to leave her for any amount of time in a situation like that?! Heck, I'm 48 years old and don't want my family to leave ME when I have to endure medical examinations and treatment! It's perfectly NORMAL. Sometimes I think people are just so self-conscious about their own hang-ups about stay-at-home mom situations that they need to point nasty fingers in order to make themselves feel better about their own parenting choices. What pills!!! SO not cool! Don't let anyone get to you, sister. You're a wonderful mother who is undergoing a lot of stress right now over the concern for your daughter's health. Don't let them get to you. You just stay strong for Aly and your family. I know it hurts and causes you to feel shaken, I do. It still happens to me and my son is 18!!! Just remember that any "sheeple" who don't understand can go right ahead and exercise their right to see things their way, and you can exercise your rights to raise your children how you see fit. Let their ludicrous opinions roll off your back - and pray that their eyes are opened!
God bless little Aly, and you and your family, Shannon! You're in my prayers!
Love and hugs -
Nini
Farmgirl Sister #1974
God gave us two hands... one to help ourselves, and one to help others!
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| darlenelovesart |
Posted - Sep 25 2014 : 10:31:39 PM
Oh Shannon, My prayers are with you that God will make things work out better for you and your family. I think that people and doctors put people in to one lump when they see similar things going on so they think every one has the same thing and then maybe prescribe the wrong things for it.
You take care and relax, your a good mom and you care for your children,
Blessings
darlene
I have learned that to have a good friend is the purest of all God's gifts, for it is a love that has no exchange of payment.
by Frances Farmer
Just follow God unquestioningly.
Because you love Him so, for if you trust His judgment there is nothing you need to know.
I trust in you Jesus... |
| hudsonsinaf |
Posted - Sep 25 2014 : 4:59:11 PM
Thank you guys! It didn't help that they informed me that the reason Aly has separation anxiety is because I stay home with my children. I explained that we try to do a play date or field trip every week, and we go to church every Sunday, but that just doesn't seem to matter to them. I feel sick over all of this! I also got a huge lecture about not vaccinating her. i tried explaining that when my now 5 year old got her first two sets of vaccinations she went completely limp noodle, but that just didn't seem to matter to them. I don't understand why if you as a parent chose to do things outside the "norm," that you are wrong. No, I don't vaccinate. No, I don't work outside the house. No, I don't put my children in daycare or in public school. BUT I am not stupid, I have two college degrees - one to be a registered nurse and the other Pre-med, I have 6 children, and we research our options and other methods of health rather than drug our kids up with who knows what just because someone thinks we should. Okay... vent over... I am just really distraught at the moment.
~ Shannon
http://hudson-everydayblessings.blogspot.com/ |
| Red Tractor Girl |
Posted - Sep 25 2014 : 4:25:49 PM
Hi Shannon, I totally understand your stress and worry. My guess is that the look for a lesion is about something neurological, possibly congenital, that may be having some sort of impact on her growth. I seriously doubt that there is any suspicion you would be abusing this baby. The multiple symptoms don't point to abuse but rather something inside Aly that is going on. I hate for you and her that the MRI is scheduled so late in the morning! Perhaps, you can be on a list for an earlier cancellation in the morning and something will work out for her. I will keep you and Aly in my prayers for an easy procedure day and some answers that will be helpful!
Winnie #3109
Red Tractor Girl
Farm Sister of the Year 2014 |
| ceejay48 |
Posted - Sep 25 2014 : 3:54:04 PM
Shannon,
Sorry to hear your update today . . . and I certainly can understand your stress! I will be praying for you as you deal with this. Stay strong, my friend! GOD KNOWS!
CJ
..from the barefoot farmgirl in SW Colorado...sister chick #665.
2010 Farmgirl Sister of the Year
Mother Hen: FARMGIRLS SOUTHWEST HENHOUSE
my aprons - http://www.facebook.com/FarmFreshAprons
living life - www.snippetscja.blogspot.com
from my heart - www.fromacelticheart.blogspot.com
from my hubby - www.aspenforge.blogspot.com |
| Red Tractor Girl |
Posted - Aug 07 2014 : 5:41:52 PM
Shannon, I am so glad your sweet baby does not have cystic fibrosis! I hope the doctors can come up with a strategy to get her gaining and growing better for her age very soon! And, I hope you are feeling better. Keep us posted when you go out for your surgery.
Winnie #3109
Red Tractor Girl
Farm Sister of the Year 2014 |
| Ninibini |
Posted - Aug 07 2014 : 08:04:12 AM
SO grateful to hear it's not cystic fibrosis, Shannon! Please keep us posted. And please give Aly a sweet little kiss on her forehead from me! God bless her! Hugs - Nini
Farmgirl Sister #1974
God gave us two hands... one to help ourselves, and one to help others!
|
| darlenelovesart |
Posted - Aug 06 2014 : 6:23:55 PM
Shannon
Praying for you all and little Aly that they find the true problem very soon.
Blessings
darlene
I have learned that to have a good friend is the purest of all God's gifts, for it is a love that has no exchange of payment.
by Frances Farmer
Just follow God unquestioningly.
Because you love Him so, for if you trust His judgment there is nothing you need to know.
I trust in you Jesus... |
| wooliespinner |
Posted - Aug 06 2014 : 5:29:31 PM
That is wonderful Shannon. Praying for the other test too.Let us know whats going on when you get a chance. Take care and give Aly a big hug for me.
Linda
Raspberry Run Farm
Nubian Dairy Goats |
| carolj |
Posted - Aug 06 2014 : 2:22:45 PM
That is great news! Praying for a correct and quick diagnosis and for strength for you.
Blessings,
Carol
Farmgirl 1823
Sow what you want to reap.
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| Calicogirl |
Posted - Aug 06 2014 : 08:29:47 AM
Awesome news Shannon!!!!!
Aly is so beautiful and precious! Thank you for sharing her photo with us. I have been and am continuing to keep her in prayer as well as you and your honey. The Lord is faithful!!
Farmgirl Sister #5392
By His Grace, For His Glory
~Sharon
http://amerryheartjournal.blogspot.com/
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| hudsonsinaf |
Posted - Aug 06 2014 : 08:03:02 AM
Thank you all! I have a definite praise - just returned from the doctor's, and her sweat test for cystic fibrosis came back negative! Praising God for His faithfulness!!!
~ Shannon
http://hudson-everydayblessings.blogspot.com/ |
| Killarney |
Posted - Aug 06 2014 : 07:06:43 AM
OH how Precious!!! Praying! I heave you and your family in my prayer Journal also!
Hugs! Connie
Imagine....#3392 |
| Denise Ann |
Posted - Aug 06 2014 : 06:18:45 AM
Shannon,
Your daughter is beautiful. What a sweet little girl!! She looks happy and content in her picture. I am thinking of you and your family. You have not failed her in any way, she looks too happy for that to be the case. I'm sure your aunt meant the best but it came out wrong. Sorry you had to deal with that. I am sending positive thoughts your way!!
Denise Ann |
| hudsonsinaf |
Posted - Jul 31 2014 : 3:34:59 PM
Thanks Carol! Her sweat chloride test to test for CF is Tuesday. They are also wanting to get her in for genetic testing.
~ Shannon
http://hudson-everydayblessings.blogspot.com/ |
| carolj |
Posted - Jul 31 2014 : 3:00:55 PM
Thanks for the update. Still praying.
Blessings,
Carol
Farmgirl 1823
Sow what you want to reap.
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| hudsonsinaf |
Posted - Jul 30 2014 : 6:25:51 PM
STILL undergoing tests here :/ She is such a trouper! Thank you for all the prayers! <3
~ Shannon
http://hudson-everydayblessings.blogspot.com/ |
| Bear5 |
Posted - Jul 16 2014 : 2:23:44 PM
What a cutie! I will be praying for Aly. Keep us posted.
Marly
"It's only when we truly know and understand that we have a limited time on earth- and that we have no way of knowing when our time is up- that we will begin to live each day to the fullest, as if it was the only one we had." Elisabeth Kurler-Ross |
| Red Tractor Girl |
Posted - Jul 13 2014 : 05:03:28 AM
Shannon, try and hang in there while doctors work to find out what is really at the heart of the problem here with your little sweetie. Try not to let your fears get ahead of you while the tests are happening. Once they know what the problems are, then they can talk about solutions and a plan of care to address them. Pediatrics is a very sophisticated branch of medicine and we know so much more than in the past about congenital and genetic defects. Children today are living, thriving and growing up to have normal lives with many kinds of problems. Lifting you and your family up in prayer for some answers soon and I join the others here in keeping up the vigil of hope!
Winnie #3109 |
| ceejay48 |
Posted - Jul 11 2014 : 8:41:08 PM
Praying for Aly, you and your family! It's so hard when our kids are struggling!
CJ
..from the barefoot farmgirl in SW Colorado...sister chick #665.
2010 Farmgirl Sister of the Year
Mother Hen: FARMGIRLS SOUTHWEST HENHOUSE
my aprons - http://www.facebook.com/FarmFreshAprons
living life - www.snippetscja.blogspot.com
from my heart - www.fromacelticheart.blogspot.com
from my hubby - www.aspenforge.blogspot.com |
| darlenelovesart |
Posted - Jul 11 2014 : 09:58:36 AM
Oh poor baby, prayers, prayers, going up for her and for you and her daddy.
Take care Shannon, God is there beside you.
blessings
darlene
I have learned that to have a good friend is the purest of all God's gifts, for it is a love that has no exchange of payment.
by Frances Farmer
Just follow God unquestioningly.
Because you love Him so, for if you trust His judgment there is nothing you need to know.
I trust in you Jesus... |
| hudsonsinaf |
Posted - Jul 11 2014 : 08:01:21 AM
Oh what a morning! She got catheterized today along with blood work. Looks like she has a UTI, but is asymptomatic, which means there may be something anatomically going on. So now they want an ultrasound and vcug done. However, a uti should not be affecting her weight. We will see how everything else comes back!
~ Shannon
http://hudson-everydayblessings.blogspot.com/ |
| Ninibini |
Posted - Jul 10 2014 : 5:49:48 PM
Oh, Shannon! Isn't she just beautiful! Just looking at her, one can see the sweetness of her soul! I will definitely pray for her - and you, too! Love and hugs - Nini
Farmgirl Sister #1974
God gave us two hands... one to help ourselves, and one to help others!
|
| nubidane |
Posted - Jul 10 2014 : 3:28:22 PM
What a sweet angel!
Prayers that she starts to gain, and that you find answers.
"We must reject the idea that every time a law’s broken, society is guilty rather than the lawbreaker. It is time to restore the American precept that each individual is accountable for his actions.” – R.R. |
