| T O P I C R E V I E W |
| mommakatof2 |
Posted - Jan 21 2008 : 05:14:09 AM
I'd like to know how many parents here have children or grandchildren with autism? and what are the main challenges that you face with them?
My son is 6, he'll be 7 in less than 2 weeks. We found out that Alex is autisic in november of 2005. He's high-functioning, so it's not as severe as it could be. I have problems with him over his chewing things, his shirt, toys, just about anything he can get in his mouth. He talks really well, if you can get him to slow down were you can understand him. In fact, I'm homeschooling him and his 5 yr old brother right now. Alex has a hard time concentrating, so it was almost impossible for him in public school. He's a whiz at mazes, man, theres some I have trouble with and this kid can do them in nothing flat. He loves animals, that's proably why I feel like we live in a zoo. Anyways, thought you'd just like to know about my kid.
Nieki |
| 8 L A T E S T R E P L I E S (Newest First) |
| mommakatof2 |
Posted - Jan 24 2008 : 07:00:17 AM
Well, my 1st husband took off before we found out alex was autisic, but during the divorce we found out. My ex still claims there is nothing wrong with alex and that I'm making it all up. Good-grief, you can spend 5 mintues with alex and tell he's autistic, but hey, that makes life with alex interesting. My husband now, he just doesn't understand alex and how to deal with him right. Me and alex don't really have to many problems, but my other son, we clash nearly all the time. Well, I guess I'll talk with ya later.......Nieki |
| UrbanChick |
Posted - Jan 24 2008 : 03:07:54 AM
Well my husband didn't start off like that. We've had several long discussions over the past three years about our family and the survivability of our marriage. We went to a austism symposium in GA and they told us that 80% of families with autistic children will end up in divorce. We didn't want that for ourselves and for Audrey so we try real hard to make it work out so everyone feels like they have equal time. He needs and likes to spend time with his daughter to relax. I need and like to spend time doing housework, outside with the animals or working and find those things rewarding so we are opposites and it works out for us. We've had to compromise and so far it is working. Our next step is to find time together but we are hoping to go on several trips this spring and summer with the horse for competative trail. I'll ride during the day till noon and then spend time with family then at night he can do his astronomy and look at stars while she and I spend time in the trailer watching a movie.
"Courage dosen't always roar. Sometimes courage is the quiet voice at the end of the day saying: I will try again tomorrow." |
| mommakatof2 |
Posted - Jan 23 2008 : 07:17:42 AM
Here's my boys...Alex and Eli.
We were at a putt-putt golf deal. |
| mommakatof2 |
Posted - Jan 23 2008 : 07:05:39 AM
I wish I had a husband like yours. Mine, he's play with the boys on the weekends, but during the week, it's like trying to pull a tooth.....Sounds like you've got a keeper........Nieki |
| UrbanChick |
Posted - Jan 22 2008 : 3:38:06 PM
I guess they do at times but they never last more than a few hours and that is only every 3-6 months. I'm pretty content now a days. My husband takes care of her as soon as he gets home so I can get dinner ready and he plays with her till bedtime so I can do things that I want. On the weekend I don't have to lift a finger to help her unless she asks for me, mostly my husband will handle everything and I can clean the house or ride the horse or whatever. He likes to spend time with her since he doesn't see her during the day during the week and I get break. All the finances are stable right now and all the major medical bills have been paid off so we are less stressed, that really helps. I remember those days when she had several tantrams a day and I would never know what sets her off but now it is much better and we do well with ABA type of therapy with her at home.
"Courage dosen't always roar. Sometimes courage is the quiet voice at the end of the day saying: I will try again tomorrow." |
| mommakatof2 |
Posted - Jan 21 2008 : 07:13:57 AM
Urbanchick....Sounds like things could get stressed. I know they do around here. Alex has the same level of speech and most things as his 5 yr old brother, Eli. His social skills are about a 3 or 4 year old. There's not much help here in west texas, but we seem to do pretty well.....Nieki |
| UrbanChick |
Posted - Jan 21 2008 : 07:04:06 AM
My daughter is autistic. She is considered moderate to severe due to feeding issues we have with her. She is on a feeding tube due to her inability to sustain weight. She is five years old and is in public pre-k program as well as having a private tutor. We are looking into placing her in a special schoool when she is in the 1st grade. She is talkative but is at a 3 to 3 1/2 year old level in her speech and language skills. Her cognitive learning is about the same for some things and she is very skilled in others. We have done therapy for her since she was 18months old. As far as her medicines, therapy and other things that are involved with her its all pretty much the same day in and day out so we are coasting as far as how hectic we are. I'm not too stressed out now a days about it. I just take it as it comes and we will deal with future stuff when it happens. I've spent way too much time worrying whether she will make it out there or not and now we are just happy to spend whatever time we have with her till she becomes a even more worrisome teenager. I can try to help with resources if they are needed but I'm limited to know whats available in Georgia. My daughter is on the Katie-Beckett medicaid program so I now how to navigate that as well as the HIPP programs here in GA.
"Courage dosen't always roar. Sometimes courage is the quiet voice at the end of the day saying: I will try again tomorrow." |
| Alee |
Posted - Jan 21 2008 : 05:48:31 AM
Nieki-
I know there are several ladies here on the forum that have children with autism and some that have children with a similar but different condition called Aspergers Syndrome. I hope that you find the support and advice you need. It sounds like your days can be challenging!
Alee
Farmgirl Sister #8
Please come visit Nora and I our our new blog:
www.farmgirlalee.blogspot.com |
