| T O P I C R E V I E W |
| Beverley |
Posted - Feb 08 2012 : 8:23:20 PM
I was just diagnosed with this. Does anyone else have this? The Dr. Started me on a new drug and seems to be helping so far. Just need other info if anyone has some...
Folks will know how large your soul is by the way you treat a dog....Charles F. Doran
beverley baggett
Beverley with an extra E...
https://sites.google.com/site/bevsdoggies/
http://bevsdoggies.blogspot.com/ |
| 25 L A T E S T R E P L I E S (Newest First) |
| Lexi Lavender |
Posted - Aug 30 2015 : 09:03:20 AM
Karen; I feel for you...that "aha" moment when you get validation of the disease is really key to moving forward. And Beverley I appreciate your post because I just realized that right this minute I am almost pain free! (Doesn't happen often).
I have recently discovered doTerra essential oils. Been getting pain relief and relaxation from them. Also Cell Food, a natural vitamin product that I take 3 times a day (per pkg directions). I recently ran out and became very sore and realized how much it must be helping.
Lavender Lexi
Farmgirl #4034
"Unemployment is capitalism's way of getting you to plant a garden." Orson Scott Card
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| Beverley |
Posted - Aug 29 2015 : 10:39:04 AM
Boy I understand completely, although I think this came on me about 15 years ago. There are times that I sit down and realize WOW I do not hurt anywhere and I just love to sit there and like breath it in, when I am like that. But, like you I feel 80 when I am only 57 as well. So, I too just keep on as much as I can. so, God Bless ya and keep on keepin on!!
Folks will know how large your soul is by the way you treat a dog....Charles F. Doran
beverley baggett
Beverley with an extra E...
https://sites.google.com/site/bevsdoggies/
http://bevsdoggies.blogspot.com/ |
| Lowrider |
Posted - Aug 27 2015 : 6:20:45 PM
I was diagnosed 5 years ago. The rumitologist said after hearing all my symptoms since I was a small child, I was one of the rare cases that was born with it. I've had three Drs. Tell me that I test positive in all 18 spots and I should be a poster child for the disease. When he handed me the brochure I just stared at it in amazement, every symptom I was reading I had, I sat in the car and cried, I always told everyone I just knew there was something wrong with me because no one can have this many ailments and hurt this bad in so many places at once! ever since I was a little girl if someone even pinched me the pain was so excruciating the spot I was pinched would hurt for hours. I use to tell people something was wrong with my skin, it always hurt to the touch. I tried medications but I was left feeling worse then the desease itself. I recently was diagnosed with Celiac desease, ulcerative colitis, diverticulitis and severe arthritis. I'm only 57 and I feel like I'm 90! I've had two complete knee replacements too. I just keep on keeping on, I quilt, garden and can and dehydrate food, I love cooking and enjoying my long weekends at my beach house. I refuse to sit around and feel sorry for myself. When I'm having a really bad day my hubby says sit down and just chill! I have discovered Kratom from one of my Facebook blogs. It's made from the leaf of a coffee tree in Asia. The red strain relieves pain. It's the best all natural pain killer I have found. I just tell people "I take a licking and keep on tickin!"
ArtSeaFartSea Me!
https://www.pinterest.com/lowrider04/
https://lowriderchic.worldpre
ss.com
#6629
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| Beverley |
Posted - Aug 03 2015 : 7:14:10 PM
thank you both for the advice. I do feel better when I take certain vitamins. so, I try really hard to make sure to take them everyday.
Folks will know how large your soul is by the way you treat a dog....Charles F. Doran
beverley baggett
Beverley with an extra E...
https://sites.google.com/site/bevsdoggies/
http://bevsdoggies.blogspot.com/ |
| Christy |
Posted - Jul 28 2015 : 8:05:57 PM
quote:
Originally posted by Christy
Here is the website for the products from Plexus. www.christysplexus.myplexusproducts.com
I have had great luck with these products. More energy, no more naps every afternoon, my acid reflux is gone, and fewer headaches.
Feel Better Daily.
Farmgirl hugs,
Christy
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| marjean |
Posted - Jul 22 2015 : 11:49:50 AM
Beverly I also have fibromyalgia and was never given anything back when I was diagnosed with it over 25 years ago. But, since then I only see a alternative MD that uses a machine called Zyto. If you can find one in your area that uses it I highly recommend it. It will tell them exactly what meds to give you that you won't have a reaction too even RX drugs.
I wish you find the right doctor and meds. FYI - I learned from my last natural doctor that our immune system is the cause of us getting these types of illness. IF you can strengthen your 5 immune system organs you will help get rid of this and more. Happy healing!
Farmgirl sister #308
Buying Club & Marketing
www.marketsofsunshine.com
Bible Research
www.jw.org |
| Beverley |
Posted - Jul 18 2015 : 1:04:46 PM
Thank you!!
Folks will know how large your soul is by the way you treat a dog....Charles F. Doran
beverley baggett
Beverley with an extra E...
https://sites.google.com/site/bevsdoggies/
http://bevsdoggies.blogspot.com/ |
| Christy |
Posted - Jul 05 2015 : 09:32:07 AM
Here is the website for the products from Plexus. www.christysplexus.myplexusproducts.com
I have had great luck with these products. More energy, no more naps every afternoon, my acid reflux is gone, and fewer headaches.
Feel Better Daily.
Farmgirl hugs,
Christy |
| Jeanna |
Posted - Jul 04 2015 : 5:03:38 PM
I have had Fibromyalgia for 18 years now and so far no medicines have helped. I am getting ready to try Savella for the first time, but some of the comments doesn't make it look too promising. I have changed my way of eating and gotten off of most sugar and have seen some improvement over the last few months. The main point is do not give up and keep moving. If you stop moving you will pay for it. I did for a few years and the pain was so much worse. Good Luck.
Jeanna
Farmgirl Sister #41
Go confidently in the direction of your dreams. Live the life you have imagined.
Henry David Thoreau |
| Lexi Lavender |
Posted - Jul 02 2015 : 09:32:01 AM
Natural is the way to go, I think... I just found someone who works with natural oils etc... I'll post if it helps my arthritis!
Lavender Lexi
Farmgirl #4034
"Unemployment is capitalism's way of getting you to plant a garden." Orson Scott Card
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| Beverley |
Posted - Jul 02 2015 : 09:30:46 AM
Could you perhaps send a link so I could check it out? thanks for the info.
Folks will know how large your soul is by the way you treat a dog....Charles F. Doran
beverley baggett
Beverley with an extra E...
https://sites.google.com/site/bevsdoggies/
http://bevsdoggies.blogspot.com/ |
| Christy |
Posted - Jul 01 2015 : 8:30:51 PM
I don't have fibro but struggle with lack of energy, migraines, and other health issues. I recently discovered products from Plexus Worldwide and every week I am seeing improvements in my health. I'm so excited to finally find a natural supplement that is helping me. Just had to share in case it could help others.
Farmgirl Hugs,
Christy |
| Lexi Lavender |
Posted - May 11 2015 : 5:41:44 PM
Thank you Amy. My mom does Tai Chi and swears by its usefulness. Since I am so rural I don’t have any classes near me. Any suggestions about a DVD or someone who teaches online?
Lavender Lexi
Farmgirl #4034
"Unemployment is capitalism's way of getting you to plant a garden." Orson Scott Card
"A crocheted piece is the lovely manifestation of a thought, expressed through hand, heart, hook, and yarn.” Francine Toukou. |
| Song Sparrow |
Posted - May 11 2015 : 5:35:57 PM
Hi ladies, I don't have fibro, but I have studied Tai Chi for several years and have had amazing results with my arthritis pain. I could barely get up a flight of steps without hanging onto the banister for dear life and can now walk up steps easily. I used to take anti-inflammatory pain meds rregularly, and almost never take them now. It's been miraculous for me. Just thought I'd share my experience, it is a powerful tool for self-healing. I hope you find relief!
Peace in our hearts, peace in the world
Amy (Sister#6098) www.danaherandcloud.com
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| Beverley |
Posted - May 11 2015 : 12:59:52 PM
I will check out those books. Thank you for that info. I now have a way of doing things too. I can sit for too long doing the same task, so, I do things in small portions of time and then go on to others. I have found out that at least I get that much of it done per day. otherwise, I was getting nothing done cause I would figure I can't do that unless I want to have a lot of pain after. So, I have had to change my mindset mostly! That has helped me. I feel sometimes like I am 80 instead of in my 50's.
Folks will know how large your soul is by the way you treat a dog....Charles F. Doran
beverley baggett
Beverley with an extra E...
https://sites.google.com/site/bevsdoggies/
http://bevsdoggies.blogspot.com/ |
| doll58maker |
Posted - May 11 2015 : 11:26:13 AM
My suggestion is to look up Amy Myers, The Myers Way, read her book called The Autoimmune Solution, and also Terry Wahls book, called The Wahls Protocol. Both are available through Amazon Kindle. Wahls also has a TED talk. Both are extremely informative. Hope this helps. These women are both MDs who had personal experiences with diseases that conventional medicine could not cure, and they did their own research to find a better way. The protocols may seem restrictive but really are a walk in the park compared to living with debilitating disease. |
| Lexi Lavender |
Posted - Apr 07 2015 : 07:24:53 AM
Hi all: this is an old posting but I wanted to let you know that I went to a healer who suggested I may have Lyme disease. I was treated with Japanese herbal remedies with great success. I don't take any meds now and except for some arthritis feel better than I have in years. I hope you are doing better as well.
Lavender Lexi; formerly Silverweed
A weed is just a plant that no one has found a use for yet... |
| AnnieinIdaho |
Posted - May 02 2012 : 08:11:12 AM
Beverley,
So glad you found the information helpful. Also, I know this sounds crazy, but in addition to all of the FMS just a couple of years ago I got allergy tested and it turns out I have oral allergy syndrome. So, for years I was eating foods I was allergic to which I am sure increased my histamines and inflammation. It is the interlukin-6, 8 and 10 that tend to run in excess in fibromyalgia patients according the latest publication I mentioned. Here I was eating oatmeal three times a week and having cantalope, etc...you get the idea of a healthy diet and I was very allergic to those foods and many others. It has been a year since I cut out the foods I am allergic to and I am doing better. I know a doctor may not want to run allergy tests, but it is one more level you can help yourself on if they will do that. Of course, it is costly, but the skin prick tests can uncover if this is playing any role in your health. I was eating healthy foods that are harmful to me for decades. I do not think this caused the FMS however. But interestingly, when I was in bed for those five years I had a cat, Mr. Pogo who sat faithfully on the end of my bed while I slept away. When I would wake up he would accompany me wherever I went in the house. Sometimes he would butt his head against my leg and give a cranky meow and yip, telling me I had to go back to bed. Sure enough, within minutes after that I would get a "wave of feeling ill and fatigue" (you know what that feels like..it is so odd) so he knew before I did. Also, when I would go out on our back deck to at least see the sky he would do the same thing and really almost push me back into the house. Now, it turns out I am highly allergic to oak trees, which surrounded our back deck I would step out onto. It amazes me to this day, how Mr. Pogo picked up on some kind of chemical change in me to warn me to get indoors. Anyway, with all of that...hang in there. I know my doctor told me 500 - 1000 mg of Vitamin D is a must. It has helped, along with 500 mg of magnesium (fibro patients are often low in this) Vitamin B complex liquid drops have helped so much too. I get them at Walgreens. ALA 200 mg 2x a day and NAC 600 mg 2x a day is what my doctor has me on and I have improved immensely. There is a lot of research on ALA and NAC on the web. Even Dr. Oz has info on these. Talk with your doctor about these things. Hope you have health insurance to help with all of this care. Really, I recommend the publication I mentioned. It addresses all the different systems of the body and what is going on with fibromyalgia in them. Your doctor will love it too. It is the most comprehensive explanations to date. Hopefully, they can move forward with the XMRV (its a retrovirus) theory. They are very close to identifying markers in a blood test for FMS. Until that day....read, take some walks even in pain as it moves CoQ10 into your muscles which help make you feel better. That is why exercise is so helpful to FMS patients. You can take CoQ10 100mg 3x day to assist your body in having enough, but you have to walk in order for it to be fed into the muscles.
You are in my thoughts.
Annie |
| Beverley |
Posted - May 02 2012 : 02:44:45 AM
annette, thank you so much for that info and your 7 steps. I have learned that I just cannot do what I used to do but I can still enjoy things if I go slow or do a little each day rather than try and do to much and then are laid up for days and can do nothing those days. I try to get out and walk a bit everyday. I was sleeping so much there for a while that I just was not getting anything done but now when I pace myself I do much better. I have also realized that sometimes I must just say no I cannot come or do something that others want me to do cause they I will be in bed for 3 days afterwards or more. so I just try my best to do the things I can and have stopped fretting about the other stuff. thanks again...
Folks will know how large your soul is by the way you treat a dog....Charles F. Doran
beverley baggett
Beverley with an extra E...
https://sites.google.com/site/bevsdoggies/
http://bevsdoggies.blogspot.com/ |
| AnnieinIdaho |
Posted - May 01 2012 : 10:49:26 PM
Hi Sisters,
Well, I have had fibromyalgia since 1989. The first 5 years it was coupled with Chronic Fatigue and I was in bed unable to walk and slept 18 hours for five years. Then the next phase began, where I was better in some areas, but it cascaded into other health issues. In the more recent years Lyrica worked, but I was allergic to it and gained 30 pounds, so I had to stop using that. Wellbutrin was the most helpful for me, but then I no longer benefited from it, so went off of that due to liver numbers going high. My doctor now has me taking ALA because it helps with nerve endings and NAC because it helps with the liver and at a blood cellular level. I also take Vit. D and adjusted my thyroid to include T-4 and T-3. I am so much better! Over the years I have found my membership in the Fibromyalgia Network to be so useful in understanding the many sides to this syndrome. Now, they have grown into a wonderful support network with evidence based information from the research they sponsored. Take a look at http://www.fmnetnews.com They offer a membership for $28 annually and in-depth ad free quarterly magazines are included in addition to their web information. Their latest publication, "Why You Have So Many Symptoms: Evidence-based, comprehensive explanations that can lead you to better treatment strategies" is worth every cent ($12.50 in the USA) and offers insight in lay person's language, yet detailed enough to present to your physician on the latest findings. I have learned so many tips and coping skills from them. Their telephone number is 800-853-2929 and address is PO Box 31750, Tucson, AZ 85751 They started back in the day when no one believed FMS was real, yet the cluster group in the Lake Tahoe area and the cluster group in New York showed something was going on. Unfortunately the long, political, and unsavory antics of some folks in the CDC set back the progress of understanding Fibromyalgia. There are some articles on the web regarding this. It is ugly and unfortunate. Keep the faith and remember my 7P's: Planning, Priority, Prayer, Pacing, Patience, Perserverance and Play. Remember, when you are laid up that even wildlife have seasons in their schedules. Do not fret, and listen to beautiful music as this helps alot.
Be where you are in the moment.
Annie |
| Bonnie Ellis |
Posted - May 01 2012 : 7:20:47 PM
Hi everyone. I'm sorry to hear you have fibromyalgia. I have had it since 1990 and now also have arthritis. What helped me (after going to a clinic which specializes in fibro), is to eliminate about half of my own stress-causing activities I could. I then had kids at home. That was a big shock to me because I like to do everything. It's really hard but it helps a lot. I really can't tell now when there is a flare whether it is arthritis or fibro, but try to relax and have a cup of herbal tea. I set my timer for 1/2 hour intervals and try to change activities (standing, sitting, sewing, painting, etc) as much as I can. I can still enjoy some of the same activities but I do them for a shorter period at a time. I am choosing things that are more calming. Asking for help with your chores really help. Others are more willing to help if you ask them to do a specific chore. Happy, healthy healing to all of you.
grandmother and orphan farmgirl |
| Lexi Lavender |
Posted - May 01 2012 : 5:03:20 PM
Hi Beverley, Sharon, Sherrye and Laura:
I also have fibro. I found mine out when we lived out West, I had sleep problems and pain, but then as summer came on the last season we lived there, I would throw up everynight in the heat.
Its a few years down the road, we live in Maine, I've been through many rounds of drugs and doctors, but I have learned that for me, a combination of things works best. I walk and stretch every day. I get chiropractic and accupuncture frequently and massage occaisionally. Hot baths are great. I've read Tai Chi is really good for fibro but haven't given it a real try.
For meds I take Effexor and Topamax which take the edge of the pain, enought so I can get around, and I avoid narcotics for all the side effects they cause.
Fortunately my husband is very patient and helpful!
I hope this helps!
Silverweed-Alexis...Farmgirl#4034
A weed is just a plant that no one has found a use for yet... |
| Beverley |
Posted - Apr 11 2012 : 11:10:43 PM
I wish I could afford to. I love to get a massage!
Folks will know how large your soul is by the way you treat a dog....Charles F. Doran
beverley baggett
Beverley with an extra E...
https://sites.google.com/site/bevsdoggies/
http://bevsdoggies.blogspot.com/ |
| bananachicken |
Posted - Apr 11 2012 : 8:27:12 PM
I am a Nationally Certified Massage Therapist and would like to throw in there that Massage Therapy can also help with Fibro. I have been treating clients who suffer from fibro for over 8 years with wonderful success. It helps relieve muscle tension, aches, pains and that general fatigue. Also, gets everything moving, boosting the immune system and increasing circulation. Not to mention general relaxation and stress reduction. I really encourage you to try to find a CMT who can help in your path of alternative therapy. Hope this helps!
http://www.fibromyalgia-symptoms.org/fibromyalgia_massage.html
"I should be having tea right now."
-Lady Annalía Elisabet Catherina Tristán Llorente |
| ljg |
Posted - Apr 10 2012 : 08:24:34 AM
ive suffered with fibro for over 15 yrs. the drugs seem to have more side effects . cymbalta caused changes in liver test. ive found the more you keep moving the better of u are. less i move the more pain i seem to have . i am giving mary janes kumbacha recipe a try ? last issue. blessings |
