| T O P I C R E V I E W |
| Holiday Angel |
Posted - Nov 11 2007 : 12:29:15 PM
Anyone know about this syndrome and how to treat it? I am baffled and we just found out that one of my grandsons has this. We wondered for 17 years why this child was so different, really different, but NO doctor diagnosed this we just found out about it by chance. He will be going to a councilor soon, but he is very violent towards his siblings all younger than he is.
If you know anything please contact me!
Hugs,
Pauline
President Heavenly Angels in Need Children's Division
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Angels in Awareness (About abuse)
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America (Support our Soldiers)
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| 5 L A T E S T R E P L I E S (Newest First) |
| juliet79 |
Posted - Jan 06 2008 : 6:44:46 PM
Please find a support group for you and your family. Just having other members around that are going through perhaps not the same thing, but similiar is helpful. My son had a disformation when he was born, and it helped to talk to people who did undertand. It meant a lot more when they said "i know what you mean" because they really did!
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| mamaofcuties |
Posted - Jan 03 2008 : 7:24:08 PM
Yes, there is no one answer to help this disorder, I have a ten year old son whom was diagnosed at 3. We have tried numerous treatments and right now are trying a gluten free/ dairy free route, he has been on numerous meds and I am not sure what will work yet, but there is an increase in research in this area, more awareness and alot of hope for effective treatments, keep praying- that does the most good!! Also, from my situation I will definantly add, always -if you arent satisfied with one doc, keep going until you find one who is willing to really look at the child and find some answers, some docs are so med crazy it is ridiculous-!! |
| farmgirlwannabe |
Posted - Nov 12 2007 : 02:36:09 AM
As stated above, Aspergers is a form of autism, and since it is a "spectrum" disorder, no two people with aspergers will have exactly the same symptoms. There is no "cure", but there are many, many different treatment programs to help with the symptoms (speech therapy, behavior therapy, nutrition therapy, etc). A lot of the therapy feedback is anecdotal (not "hard" research) so it can be confusing, to say the least. My best advice is to not get too bogged down with looking for a "cure", but to take the most difficult/pressing concerns, and prioritize what you're going to work on (some people throw themselves into doing every therapy they hear about and run themselves ragged.) Also, look for support in your community, and find someone to tell you what's available-don't just rely on what your medical/ school dist./ couselor is telling you is available for support/ therapy (a lot of times they just know what's available in their own agency, not the community at large). Every county should have a family resource and referral agency-these are agencies that are set up as a resource just for families with children with special needs, and they can give lots of unbiased information. Also, they can tell you what resources are available for your grandson; specific to his area, and how to connect with them. The FRC's are usually run by people who have children with disabilities, so they're going thru or have gone thru the same issues you are having.
Here's a few other quick suggestions:
Your grandson may need speech therapy-not to help him talk; but for what is called "pragmatic" speech- being able to understand all the nuances of language (like when someone is telling him a joke or being ironic, he may not understand, and he'll overreact, etc.) Also, typically, people diagnosed "on the autism spectrum" usually have a harder time understanding non-verbal language (like reading facial cues). Also, typically (as much as you can say typically, since each case is different) sensory integration therapy can be very helpful (therapy to help your body effectively "filter" and "read" information coming from their senses). This can be a big issue, and can cause a lot of the behavior issues, because "normal" sounds, smells, etc. that wouldn't bother most people can be very overwhelming to someone with sensory processing issues, and their reactions can seem like "negative" behavior.
Lastly, check out the NICHCY website; they've got lots of very basic, very clear info-and make sure you take all the info you hear (even mine!) with a "grain of salt" and make sure it will work for your family- since there's no hard and fast rule for therapy, there's lots of info out there, and some of it is garbage, and some is good-but not for everyone-every case is different. (By the way, I work for the Sacramento County Office Of Ed. in CA- training teachers who work with children with special needs. If you have any other questions, feel free to e-mail me and I'll at least try to point you in the right direction!)
Good luck and your family will be in my prayers,
Audrina |
| Holiday Angel |
Posted - Nov 11 2007 : 1:46:36 PM
Thank you! I will certainly check it out.
Hugs,
Pauline
President Heavenly Angels in Need Children's Division
http://heavenlyangelsinneed.com
Angels in Awareness (About abuse)
http://angelsbeaware.blogspot.com/
America (Support our Soldiers)
http://sugarslifeblog.blogspot.com/
Holiday Blog for Children
http://paulinesholidayblog.blogspot.com/ |
| willowtreecreek |
Posted - Nov 11 2007 : 1:01:49 PM
Aspergers is a mild form of Autism. I don't believe there is a cure or a "treatment" it is just on of those you have to learn to deal with. www.aspergers.com is a good and informative site. I will keep you and your family in my prayers.
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BLOG
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