| T O P I C R E V I E W |
| Carol Sue |
Posted - Sep 12 2007 : 7:41:10 PM
Dr's appt was encouraging to me today. My dr thinks I may have, ready for this word, plymyalgia rheumatica. Want to know what it means in english it means inflamed tissues. It can be caused for different reasons one of them being a major infection. The treatment is prednisone, which she started me on this afternoon. We should see a change in 7 days, if there is change than we are done, if no change than off to the big guns I go, alias the specialists.
Now is a waiting game again. Thanks for the continued prayer.
Carol Sue
Enjoying life. |
| 25 L A T E S T R E P L I E S (Newest First) |
| Daisy |
Posted - Sep 19 2007 : 02:58:13 AM
Hi Carol Sue! I too was diagnoised with PMR almost one year ago. There are some online support group type things out there, however they seemed more depressing then anything to me. If you ever want to chat I'd be happy to. I opted not to do the prednisone. However my symptoms eased up and became bearable. But at one point it was awful. It's good you were diagnoised. Many times it takes a while for drs. to figure it out. Use that prednisone energy while you have it!!! LOL Daisy
Thistle Sprig Farm |
| Carol Sue |
Posted - Sep 18 2007 : 11:18:53 PM
Here is how it is for right at the moment. Gave me two days last Wed and Thursday of high doses and then low dosage until next Wednesday when I see the doc again. Low dosage, pain back and I am pooped. This checking it out and getting it figured out is quite the journey. keep praying girls, and thanks for each one and every good thought. I still am inclined to think the diagnosis is right, the dosage is too low but have to wait and see.
Carol Sue
Enjoying life. |
| Tammy Claxton |
Posted - Sep 18 2007 : 5:11:10 PM
I hope the meds work for you Carol Sue. I'll say a prayer for you! Take care!
What doesn't kill you only makes you stronger!
http://countryintheburbs.blogspot.com/ |
| Miss Bee Haven |
Posted - Sep 18 2007 : 2:24:59 PM
I hope the prednisone is working for you, Carol Sue. I usually end up taking it every year for poison ivy and it really is an energy producing wonder drug. Personally, I love the stuff! My dad has taken it for years, too. People have told me that it may make you hungrier(I've never gained weight on it - I've been too busy using up all my excess, new found energy to eat too much! ) :D But do make sure that, if you do go off of it, that you make the docs give you a step down dose - ease you off it. I made the mistake of not doing that once, and my energy level crashed so bad that I literally could NOT even get out of bed for two days.
"If you think you've got it nailed down, then what's all that around it?" - 'Brother Dave' Gardner |
| Hideaway Farmgirl |
Posted - Sep 18 2007 : 08:19:04 AM
Carol Sue, how are you feeling now? Hopefully you are seeing/feeling much improvement.
I had to laugh at all the prednisone stories, I was on it for 3 weeks when I had a total over-the-whole-body experience with poison ivy, and I ended up wallpapering the electrical outlet covers in my kitchen, and organizing my recipes into color-coded folders! Crazy stuff, but hopefully you'll be seeing an improvement soon.
Jo
"Wish I had time to work with herbs all day!" |
| Phils Ann |
Posted - Sep 14 2007 : 10:29:35 AM
Carol Sue, my Great Aunt had Polymyalgia Rhumatica (sp) and was on prednisone for about 25 years. She became a painter during those years, worked full time, and had loads of energy. Yes, her hips also hurt. However, she lived to be 88, and everyone's hips hurt by then
Your attitude is great! Enjoy that clean house. I'll be praying for you.
Ann
Sairy Hill Thicket
There is a Redeemer. |
| Nancy Gartenman |
Posted - Sep 14 2007 : 04:46:33 AM
Carol Sue,
That IS good news. peace of mind is a wonderful thing. Now get that fall cleaning done!!
NANCY JO
www.Nancy-Jo.blogspot.com |
| Ronna |
Posted - Sep 14 2007 : 12:18:48 AM
Carol Sue,
When you run out of things to do at your house, come stay with me and I'll put your excess energy to good use!! The only thing I didn't like about the Prednisone was the extra weight I did not need to add. And it didn't go away when I was done tapering it off after a week or so.
Ronna |
| Carol Sue |
Posted - Sep 13 2007 : 10:54:47 PM
So Kathie was that my bedtime story.
I know that I am still tired but I noticed tonight that my hips are giving me extreme agony. Just pain....hmmmm hoping that is a good sign.
Girls you make me laugh and smile, much needed.
Enjoying life. |
| Shirlaroo |
Posted - Sep 13 2007 : 4:32:31 PM
Carol Sue, fingers crossed this treatment works for you. If one of the side effects of the drug is a clean home, it can't be that bad.
Friends are the best collectables. |
| Alee |
Posted - Sep 13 2007 : 4:22:53 PM
Oh Kathie! Your stories always make me laugh! I wonder what they thought when their rug got magically cleaned in the middle of the night!
Alee
The amazing one handed typist! One hand for typing, one hand to hold Nora!
http://home.test-afl.tulix.com/aleeandnora/ |
| Kathie |
Posted - Sep 13 2007 : 2:50:06 PM
I was JUST going to tell you that when i have been on Prednisone..
i was like a Cleaning Maniac!!
& I ABSOLIULTY HATE Cleaning!!
I don't think my house has ever been cleaner..
I was up all hours of the nite!
NON STOP!!!
Doing laundry!! You name it..
I was sneaking in the kids rooms slipping their bedspreas off while they were sleeping because i was running out of stuff to wash!!!
i EVEN washed the nest door neighbors front door rug!!
ok.. don't look at me like that..
I'm not Completely mental!
we lived in a town house.. we shared the entry way..
So.. As I walked out to get mine.. i noticed theirs out there too..
& decided it looked in need of a wash as well & threw it in with mine!
Of course i never TOLD them about this.. I'm not COMPLETELY crazy!
Hope your feeling better soon Pumpkin!!
Love ya lots ya know!!
In a World Where you Can Be Anything, Be Yourself.. |
| Firemama |
Posted - Sep 13 2007 : 2:04:24 PM
Ohhh Carol Sue, doesnt it feel good to know what you are dealing with? I think you should come see my kitties tomorrow morning..... gimme a call
Mommy to 2
Your FreckleFaced Farm Girl!!
Help when you can, Pray when you can't. |
| Carol Sue |
Posted - Sep 13 2007 : 1:55:18 PM
I have only taken it for a day and yes, there is more enegy. I wondered if it was just cause there was an answer or what, hmmmm I will keep this one in mind. Thanks for the heads up Libbie. If this is it, the the proabablity is that I will be on it for 2 years, sometimes it is for lifetime. Hmmmm just think of all the cleaning I will get done, or sewing, or quilting, or no mind on overload!!!!!!!
Enjoying life. |
| Libbie |
Posted - Sep 13 2007 : 1:38:05 PM
I hope that the prednisone works for you. I took two "rounds" of it a few months ago because I fell down the stairs and messed up my ankle, and I can't tell you - I had SO much energy -- my house was C-L-E-A-N!!! I think I even ironed my husband's shirts -- I may have blocked that memory, however. Have you noticed that you *ahem* need a lot less sleep lately?
XOXO, Libbie
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| Beemoosie |
Posted - Sep 13 2007 : 1:18:11 PM
Praying this treatment works for you Carol Sue! (((HUGS)))
My soul magnifies the Lord, And my spirit rejoices in God my Savior. Luke 1:46,47
www.beequilting.blogspot.com
http://beemoosie-picture-diary.blogspot.com/ |
| Alee |
Posted - Sep 13 2007 : 08:19:53 AM
((Hugs)) I am so glad you have a name for it now Carol Sue! I hope the new treatment really works for you!
Alee
The amazing one handed typist! One hand for typing, one hand to hold Nora!
http://home.test-afl.tulix.com/aleeandnora/ |
| Marybeth |
Posted - Sep 13 2007 : 06:53:06 AM
We will call it IT. Always makes one feel better to have a name on it---Not get better--FAST! MB
www.strawberryhillsfarm.blogspot.com
www.day4plus.blogspot.com www.holyhouses-day4plus.blogspot.com
"Life may not be the party we hoped for...but while we are here we might as well dance!" |
| Mumof3 |
Posted - Sep 13 2007 : 05:37:17 AM
Boy, that is a mouthful! I so hope this works and you will have resolution to all of this soon. ((hugs))
Karin
Wherever you go, there you are.
Come visit me at:
www.madrekarin.etsy.com
www.madrekarin.blogspot.com |
| Nance in France |
Posted - Sep 13 2007 : 02:23:43 AM
Carol Sue, leave it to you to have something exotic sounding. Looks like spilled alphabet soup.... Seriously, sending you my love and I am keeping you in my prayers daily. I am looking forward to seeing your positive post in a week or so! Hugs, Nance |
| levisgrammy |
Posted - Sep 13 2007 : 02:20:58 AM
Carol Sue,
Well, half the battle is knowing WHAT it is. Hoping this medication works for you.
Keeping you in prayer.
hugs,
Denise
"The earth is the Lord's and the fullness thereof and all that dwell therein."
www.torismimi.blogspot.com |
| katmom |
Posted - Sep 12 2007 : 11:55:47 PM
Well, now that you know what it is, 'course I can't even spell it, let alone pronounce it,,,,the doctors can get on with treating you.
Hang in there, you'll be up to your antics, oh wait,,,,you still are!!! haha!
>^..^< Happiness is being a katmom.
www.katmom4.blogspot.com |
| abbasgurl |
Posted - Sep 12 2007 : 9:55:10 PM
So glad to hear you got some answers Carol Sue! Hope this treatment does the trick. I continue to pray for you.
Blessings,
Rhonda
I'm a one girl revolution. |
| Maryjane Lee |
Posted - Sep 12 2007 : 9:30:09 PM
Thinking of you dear Carol Sue and pray that you heal very soon! Please continue to keep us posted. XO
Hugs, Maryjane Lee
The Beehive Cottage~est. 1971
"Sisters on the Fly"
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| JudyBlueEyes |
Posted - Sep 12 2007 : 8:44:57 PM
Wow, Carol Sue - that IS a mouthful! I hope the prednisone works for you. Prayers for your healing! Judy
We come from the earth, we go back to the earth, and in between, we garden! |
